Last updated: June 2023
I have just been diagnosed in March. Learning how to do everything I can to reduce my flare-ups and reactions is a new journey for me. Every day I experience something new in terms of advice. Sjogren's appears to be my type of Lupus. My Chloride and sodium levels are high and so I know I must reduce my salt intake to begin with, but I guess my rheumatologist will help me determine what my diet should be and how to avoid the severe skin rashes I am experiencing. I am also using Neutrogena sun screen both facial and body when I am going out. I am determined to make the most of my knowledge and be positive about everything.
Have there been things you have learned along your lupus journey that you wish had been explained to you by a healthcare provider earlier?