Blindsided by Lupus and Autoimmune Diseases
Last updated: June 2023
I was diagnosed with SLE Lupus 15 years ago.
Growing list of diagnoses
Since then, I have been diagnosed with Fibromyalgia, Sjogrens, Raynauds and this past November, tests showed my Thyroid is having problems. Being tested for Hashimotos disease and also have to have a biopsy done on one of three nodules on my thyroid.
Fed up and frustrated
I had to medically retire 7 years ago. I was only 46 at the time. I get random rashes and get shingles a lot. I have trouble swallowing and get food stuck at the bottom of my esophagus all the time. So very frustrating because I look healthy but have been steady declining over the last few years.
How are you most likely to respond when someone offers you unsolicited advice about your lupus?