My Lupus Struggle
Last updated: June 2023
I've had Lupus since 1989. I lost a baby because of it. That's when I found out I had Lupus.
My flare scare
I've had quite a few flares. In 2020, I had a big flare. I had gone to the bathroom and I noticed a lot of blood in the toilet. I immediately called my mom in the bathroom. She called 911. I went to the local hospital. They had to send me to another hospital because there wasn't a rheumatologist on staff. When I got to the other hospital they put me in an induced coma. I had a lot of transfusions with platelets because my platelet count went down so very low. I developed a blood clot in my arm. I had to get chemo to dissolve the clot. They finally came to the conclusion that I had an infection that traveled to my bloodstream.
Coping through faith
Thank God for the doctors and nurses in that hospital they sent me to. I also know that God is so good. With Lupus and the way it attacks the body, I know it was God that brought me through. Thank you, God for being there for me!
Have there been things you have learned along your lupus journey that you wish had been explained to you by a healthcare provider earlier?