The Sun, Lupus and Me
Last updated: June 2023
I loved being outside soaking up the sun. Feeling the warmth go through my body.
The sun is now my enemy
I was very young when I was diagnosed with Lupus. I was 8. It has affected my life more than I expected. Like being able to go outside and work in the garden like I used to love to do. Who knew that the sun could make you so sick. The doctors told me the sun would become my enemy. I can't enjoy the sun because it makes me very sick and I end up in the hospital. The heat is another enemy.
I know people that have Lupus that can be in the sun and heat. The funny thing is that I live in Texas where it's super hot in the summer. It's hard not being able to go to pool parties because I can't be in the sun. My doctor and my mom tells me to wear long sleeves in the Texas heat!! No thanks, I'll stay home. I miss out on a lot of family and friends because of Lupus. But I would much rather be at home and not in the hospital just because of the Sun.
Have there been things you have learned along your lupus journey that you wish had been explained to you by a healthcare provider earlier?