Lupus Is Not Stopping Me
Last updated: June 2023
I got diagnosed back in 2015. I didn't have any insurance, so I couldn't afford to get any medication. I stayed going back and forth to the emergency room.
Lupus and disability
I had to stop working. I blacked out twice at my job, and they ended up letting me go, so I was struggling for a while trying to figure things out. But, I applied for social security and ended up getting SSI back in 2018.
I got a good doctor, I got the right meds, and as of right now, my lupus has been going up and down. I have my good days and my bad days dealing with my kidneys. I know more now than I did about lupus back in 2015.
What I learned from lupus
What I learned from lupus is that you're never alone and it's okay to rest, and you are never a burden on anybody. When it comes to doctors, always ask questions if you don't understand something. Lupus is a mystery. 🦋💜
Have there been things you have learned along your lupus journey that you wish had been explained to you by a healthcare provider earlier?