Still Learning

By David Jeal

1 min read

About to start month 3 of my Lupus and RA journey and although I am only 59, some days I feel ancient!
I am learning daily what triggers my flares, and most of my health issues started in 2015 after having 4 strokes in 9 weeks. I am going to start a journal so that I have a reference point for the future. I live in a Metropolitan City with only 2 qualified Rheumatologists, so this group is a life changer for me. My faith, family and this group are going on an adventure 👌😎

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Erin Rush Community Admin
Hi, <inline-mention username="David Jeal" user-id="7001977"/>! How have things been going for you? Has journaling helped you pinpoint your triggers? I know it's a challenge when you live in an area with limited access to specialists. Hopefully, the ones you have are knowledgeable and have good bedside manner. I hope summer has been treating you well (I know the heat can be brutal for people with RA and Lupus)! Best, Erin, <a href='https://lupus.net' target='_blank'>Lupus.net</a> Team Member.
David Jeal Member
Thanks Erin, being in South Africa, we are in winter 
1. Erin Rush Community Admin
 Oh, goodness! How did I miss that, <inline-mention username="David Jeal" user-id="7001977"/> ?? My apologies! So, how is winter treating you so far? Best, Erin, <a href='https://lupus.net' target='_blank'>Lupus.net</a> Team Member.
David Jeal Member
No worries 🤗 currently going through a bad Flare, but otherwise ok. Have a great day and kind regards 
1. Erin Rush Community Admin
 Ugh. Flares. I hope it passes quickly, <inline-mention username="David Jeal" user-id="7001977"/> ! Best, Erin, <a href='https://lupus.net' target='_blank'>Lupus.net</a> Team Member.
purplepassion56 Member
I have had Lupus for 31 years, but the last few days I have been very dizzy, if I bend over or reach up to pull the chain on my ceiling fan. Someone told me I may need to drink more water? Any ideas would be great. 
1. Doreen H Community Admin
 <inline-mention username="purplepassion56" user-id="2036806"/> We appreciate you reaching out. Lupus is a complex autoimmune disease with many possible complications. Unfortunately, we cannot offer medical advice over the Internet (for your own safety), However, many factors can contribute to dizziness including dehydration as well as certain medications. We always recommend bringing any new or changing symptoms to your healthcare provider's attention. All my best, Doreen (Team Member)
David Jeal Member
Hello, yes I have also been experiencing this issue. I cut out all products that contain Aspartame and Asesilphane K as well as drinking more water, and I have felt less lightheaded and dizzy. I am also having fewer headaches 🤗 I hope that this helps You 👍
1. Doreen H Community Admin
 <inline-mention username="David Jeal" user-id="7001977"/> Thanks so much for sharing your experience. How are you doing today? ~Doreen (Team Member)
David Jeal Member
Hello Doreen, actually, quite well after a busy few days of work 😎 have a great day and kind regards