Still No Answers

By CommunityMember6964200

Last Updated:

1 min read

I have even given up going to my GP as it's just a waste of time as they don't seem to believe me and dismiss it as an age thing but I've been like this for a good number of years now. I'm in constant pain in all my joints I'm finding it hard to work now. I seem to have aged so much... I know it's the pain.

My recent issue is a huge rash on my bottom, which has spread a considerable amount over the months... I have just been given some different creams to see if it cures it... it's so sore, and it bleeds and goes scabby. It's so frustrating. Thanks for reading my story...and any advice will be greatly received.

Hope this does not offend anyone .

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Erin Rush Community Admin

Hi, <inline-mention username="CommunityMember6964200" user-id="6964200"/>! I am so sorry you are still without a diagnosis. I know that must be so disheartening. It sounds like you have tried to get your GP to listen to you. Have you sought a second opinion? Have you thought of getting a referral to a specialist, like a dermatologist or rheumatologist? Apologies for the questions, but I was just wanting to get a better understanding of what you have already tried. I do hope you are able to get some answers (and treatment!) very soon! Best, Erin, <a href='https://lupus.net' target='_blank'>Lupus.net</a> Team Member.
roseflower Member

I took an ANA test that was positive and I am waiting on an AVISE test that will show specifically which autoimmune disease I have. I regret that you’re having such a difficult time getting diagnosed. 
1. GabbyFormica Community Admin
 
 <inline-mention username="roseflower" user-id="8609143"/> I hope the results of your AVISE test get you the answers you deserve so you can start a treatment plan that works for you! Keep us in the loop. Wishing you a flare-free week! Gabby (team member)
Racquel H. Dozier Member

<inline-mention username="CommunityMember6964200" user-id="6964200"/> I’m so sorry that you haven’t been able to get firm answers on what is going on. It can take such a long time to get a firm diagnosis and a treatment that works. It becomes a so important for us to really advocate strongly for ourselves. Have you asked you GP for a referral to a rheumatologist? Are you seeing a dermatologist for the rash? I did a video to ask the doctor questions that may help you to get to see a rheumatologist you can find it below 👇 https://lupus.net/video/doctor-communication I hope that helps. ~Racquel~ <a href='https://lupus.net' target='_blank'>lupus.net</a> team member
CommunityMember6964200 Member

No I've been given cream and a barriycream doesn't work infact it's my h worse thank you all for comments.x
Doreen H Community Admin

<inline-mention username="CommunityMember6964200" user-id="6964200"/>, that's so frustrating. I'm sorry you are not finding any relief (or answers!) This article may provide some helpful information: <a href='https://lupus.net/symptoms/rash' target='_blank'>https://lupus.net/symptoms/rash</a> In addition, you may want to check out our sister site <a href='https://Chronic-Hives.com' target='_blank' rel='noopener noreferrer ugc'>Chronic-Hives.com</a> which may provide some helpful resources. All my best, Doreen (Team Member)