Juggling Family Tragedy and LupusI am not sure I have had Lupus, diagnosed March 23 2021. I have had years of back and hip pain. Then...reactions4comments
Confused and DismissedI have had a lot of health issues for years, but never got an answer. My last doctor's appt. She asked, "did...reactions11comments
Coping with SLE and MotherhoodI was diagnosed with SLE the summer of 1987. I had to have surgery in May of that year. After surgery, my...reactions1comment
Disaster Responder Living with LupusMy husband and I have been disaster responders for years. I've been deployed to fires, floods, hurricanes (most recently Hurricane Harvey) and...reactions5comments
Car WreckMy name is Julie 51 years old. 2004 I was in a severe car wreck. My best friend died on impact. I...reactions4comments
Panic Attacks and LupusHey, I have had lupus since my teens and I am in my late fifties now! I also have PTSD and so...reactions2comments
You Have Lupus. Now What?I did feel strange the day I went for Jury Duty. In fact, after arriving at the courthouse, I was so tempted...reactions15comments
Challenging SymptomsHi my name is karen willis, I am 51 years old. I was diagnosed with lupus Nov. 19, 1999. I have 3...reactions25comments
Winning The War of LupusI was diagnosed with SLE Lupus in 1999, it's been a long journey that has helped me to grow stronger. As most...reactions3comments
My MGUS and Lupus ConnectionI’ve had lupus and Sjogren’s since my late thirties, I’m now in my sixties. I would say that I’ve been on the...reactions8comments
A Childhood StoryI've had Lupus since a child. I experience pain differently compared to many. I thought the pain was a normal way of...reactions5comments
My LupusMy symptoms started when I was 21yrs old. I had just gotten married and was working one of my dream jobs. I...reactions9comments
The Perfect FriendI left my rheumatologist office one day so empty inside, so alone with my own body, defeated, sad, and mostly abandoned by...reactions2comments
My Ever-Changing NormalWhen you graduate high school there’s this feeling that the whole world is available to you and to all of your dreams...reactions2comments
Steroid Cream for Scalp?Hi Ava, You mentioned steroid cream for scalp. Can you tell me more about that? Thanks JoAnn...reactions2comments
From Being a Social Worker to Needing OneGentle greetings, I’m Lina T. These are a couple of layers of my health journey. I was already a widow in my...reactions7comments
Dry Scalp? What Do You Do for It?Hi. Does anyone else have dry scalp? And what do you do for it? I am getting growths of some kind on...reactions14comments
Newbie - Neutropenia? Raynauds?Hi all, I have most of the symptoms but never tested - neutropenia, low fever, mouth sores, red cuticles, fatigue, Raynaud's, septrin...reactions1comment
Epilepsy & Lupus: My Rocky RoadHi, my name is Vanessa Jimenez, and I was first diagnosed with Epilepsy in 2008 before lupus. I was getting partial and...reactions2comments
"Drumming To A Different Beat"My name is Dion Langley and I am a professional drummer. I began playing the drums at the age of 6 and...reactions2comments
