The Positive ChangesMy diagnosis came in 2015; although, there were several signs for many years prior (quite common). The process of learning to focus on the positive each day was not effortless... By lisajo2 min readBookmark for laterReactions 0 reactions Comments1 comments
Self-Care for Lupus WarriorsMy name is Julie 51 year old. I have scleroderma lupus. What I have learned during this hard time is not to let the pandemic affect me. I constantly do... By penny1301 min readBookmark for laterReactions 0 reactions Comments1 comments
Diagnosed During the PandemicI was diagnosed with lupus in March 2020, just as the pandemic was shutting my city down. I had gone in for a blue swollen joint, and after some testing... By LauraD1 min readBookmark for laterReactions 0 reactions Comments1 comments
Childhood Lupus and Feeling DifferentI am Maha, 19 years old. I have been diagnosed with SLE in 2013. I was only 12 years old, I had such a healthy beautiful life, I loved everything... By Maha2 min readBookmark for laterReactions 0 reactions Comments1 comments
Self Care During a PandemicMy name is Julie. I have scleroderma, lupus. It was so hard trying to get a doctor visit, everyone wanted to do it on the computer. I was like, "oh... By penny1301 min readBookmark for laterReactions 0 reactions Comments5 comments
Newly DiagnosedI found out about 60 days ago that I have skin lupus. I was treated with hydroxychloroquine and had a reaction to it. Has anyone else had this happen? Are... By Kmitchell1 min readBookmark for laterReactions 0 reactions Comments1 comments
Juggling Family Tragedy and LupusI am not sure I have had Lupus, diagnosed March 23 2021. I have had years of back and hip pain. Then 10 yrs ago, I spent a year taking... By Mary 591 min readBookmark for laterReactions 0 reactions Comments4 comments
Confused and DismissedI have had a lot of health issues for years, but never got an answer. My last doctor's appt. She asked, "did you know you have lupus?" What? "NO." Four... By sissyjb2 min readBookmark for laterReactions 0 reactions Comments11 comments
Coping with SLE and MotherhoodI was diagnosed with SLE the summer of 1987. I had to have surgery in May of that year. After surgery, my incision spread from an invisible line to a... By Mary N4 min readBookmark for laterReactions 0 reactions Comments1 comments
Disaster Responder Living with LupusMy husband and I have been disaster responders for years. I've been deployed to fires, floods, hurricanes (most recently Hurricane Harvey) and locally on a continuous basis to structure or... By Linda from Texas2 min readBookmark for laterReactions 0 reactions Comments5 comments
Car WreckMy name is Julie 51 years old. 2004 I was in a severe car wreck. My best friend died on impact. I was left to die in the car with... By penny1301 min readBookmark for laterReactions 0 reactions Comments4 comments
Panic Attacks and LupusHey, I have had lupus since my teens and I am in my late fifties now! I also have PTSD and so many other things it’s ridiculous! But I have... By kcarey1 min readBookmark for laterReactions 0 reactions Comments2 comments
You Have Lupus. Now What?I did feel strange the day I went for Jury Duty. In fact, after arriving at the courthouse, I was so tempted to let the officer know that I was... By fancy24 min readBookmark for laterReactions 0 reactions Comments11 comments
Challenging SymptomsHi my name is karen willis, I am 51 years old. I was diagnosed with lupus Nov. 19, 1999. I have 3 adult daughters, with my first grandchild on the... By kardannes1 min readBookmark for laterReactions 0 reactions Comments25 comments
Winning The War of LupusI was diagnosed with SLE Lupus in 1999, it's been a long journey that has helped me to grow stronger. As most lupus patients would say just take it one... By thie1 min readBookmark for laterReactions 0 reactions Comments3 comments
My MGUS and Lupus ConnectionI’ve had lupus and Sjogren’s since my late thirties, I’m now in my sixties. I would say that I’ve been on the less severe spectrum with no life-threatening features of... By mlkeith19741 min readBookmark for laterReactions 0 reactions Comments8 comments
A Childhood StoryI've had Lupus since a child. I experience pain differently compared to many. I thought the pain was a normal way of life and never really complained. I was a... By tinaj1 min readBookmark for laterReactions 0 reactions Comments5 comments
My LupusMy symptoms started when I was 21yrs old. I had just gotten married and was working one of my dream jobs. I was first diagnosed with rheumatoid arthritis. Then I... By angiebobe1 min readBookmark for laterReactions 0 reactions Comments9 comments
The Perfect FriendI left my rheumatologist office one day so empty inside, so alone with my own body, defeated, sad, and mostly abandoned by life. It is hard when your doctor wants... By magicalpatterns2 min readBookmark for laterReactions 0 reactions Comments2 comments
My Ever-Changing NormalWhen you graduate high school there’s this feeling that the whole world is available to you and to all of your dreams. Shortly after I graduated in 2004 at 18... By Francesca Rudman3 min readBookmark for laterReactions 0 reactions Comments2 comments