Stories

While I do not have Lupus I do suffer TERRIBLY (in a Covid shot induced severe flare right now) from BOTH Fibromyalgia and RSD and have for years. It is...

I was diagnosed with lupus at age 18. Coming from a small town in Kentucky, not many doctors even knew what lupus was, much less knew what to do. I...

I was officially diagnosed in 1994 with Lupus, Sjogrens, RA and Fibro...although we knew I'd had it all my life. Very sick child with doctors scratching their heads with no...

I struggled for years thinking I was not good enough! I could not keep up with my family and friends' pace. I always had to back out of activities and...

It began right after my son was born, with getting sick and knowing something wasn't right, yet no one would listen or believe me. When it began I was a...

After having a breast reduction I became sick. The symptoms were ones I had for years. We lived overseas at the time the doctors told me nothing was wrong with...

Hello, I have had Crohns Disease which was diagnosed when I was 18. I am now 48. Had resection in 2005. Was great for awhile, then blood disorders continue to...

I’ve learned to live with this motto: Life is 10% of what happens to you 90% how you react. I’ve learned to cut myself a break when I need one...

My diagnosis came in 2015; although, there were several signs for many years prior (quite common). The process of learning to focus on the positive each day was not effortless...

My name is Julie 51 year old. I have scleroderma lupus. What I have learned during this hard time is not to let the pandemic affect me. I constantly do...

I was diagnosed with lupus in March 2020, just as the pandemic was shutting my city down. I had gone in for a blue swollen joint, and after some testing...

I am Maha, 19 years old. I have been diagnosed with SLE in 2013. I was only 12 years old, I had such a healthy beautiful life, I loved everything...

My name is Julie. I have scleroderma, lupus. It was so hard trying to get a doctor visit, everyone wanted to do it on the computer. I was like, "oh...

I found out about 60 days ago that I have skin lupus. I was treated with hydroxychloroquine and had a reaction to it. Has anyone else had this happen? Are...

I am not sure I have had Lupus, diagnosed March 23 2021. I have had years of back and hip pain. Then 10 yrs ago, I spent a year taking...

I have had a lot of health issues for years, but never got an answer. My last doctor's appt. She asked, "did you know you have lupus?" What? "NO." Four...

I was diagnosed with SLE the summer of 1987. I had to have surgery in May of that year. After surgery, my incision spread from an invisible line to a...

My husband and I have been disaster responders for years. I've been deployed to fires, floods, hurricanes (most recently Hurricane Harvey) and locally on a continuous basis to structure or...

My name is Julie 51 years old. 2004 I was in a severe car wreck. My best friend died on impact. I was left to die in the car with...

Hey, I have had lupus since my teens and I am in my late fifties now! I also have PTSD and so many other things it’s ridiculous! But I have...