Stories

One day about 15 years ago I woke up with what I thought was the flu. Body aches, muscle joint pain, and fatigue. Oh, the fatigue! It was horrible. After...

It was 2006, my dermatologist promised me he would help me. Yes, he did, absolutely. I am American Indian. I had 1 little pimple on my face. My doctor cut...

I look back 11 years ago, when I was diagnosed with Mixed Connective Tissue Disease and I honestly am blessed it flared up when it did. I lost my 11-year-old...

I started showing signs about age 12 but the doctors always came up with crazy reasons I was feeling the way I was. I learned to deal with it and...

Lupus has affected my life in so many ways. I was diagnosed at 15 (I’m now 22). The day of my first doctor appointment, I couldn’t even tie my own...

I was in a horrible car wreck in 1991... it was shortly after that I was diagnosed... pretty sure that was the trigger. I was 19. I am now 50...

I HAVE HAD A LOT OF HEALTH ISSUES FOR YEARS, But my mom didn't get any answers for awhile (I was 7 at the time). At one of my doctor's...

I had struggled with pain and multi-organ complications for most of my life. Doctor said it was stress or depression. I could have open a mental health clinic with all...

When I was told I had Lupus by my rheumatologist, I said no way, not me! I have pain, but I'm fine. Reading about it as a few years went...

Being diagnosed in 2010, a single mom and a very active woman, Lupus was not real. It was something that a doctor said was the reason for my poor health...

Lupus has totally changed my life. It took over 10 years to diagnosis and by then I was quite ill. I have severe photosensitivity and can’t be in the sun...

I was diagnosed with Lupus in December 2019. I probably would have never known if I had not requested testing for it after the loss of my sister in August...

I was diagnosed with Lupus on October of 2018. Before Lupus, I was very active with lots of energy. Now, I can barely exercise, because of constant joint pain and...

I was diagnosed in Oct. 2020. My life has drastically changed. I have cried for my old self. I am learning to live a new life. I am adapting on...

I was diagnosed in 2015. It is a daily struggle everyday. I also have peripheral neuropathy in both hands and legs, so that is another issue that I deal with...

Lupus has been a major part of my life for over 30 years. It’s not something that I’d wish on anyone. Dealing with the pain became a part of my...

Last post, in December found 4cm mass turned out to be renal carcinoma. January 28th had it removed, started recovery, but I never do anything easy. Feeding tube stopped working...

I have finally purchased 2 long sleeved shirts so I can go outside when it's sunny. I always get sicker when I go in the sun and break out in...

The day was September 3, 2013 and I got a call from my PCP saying I needed to see an oncologist, only having hounded her about a lump in my...

I'm 45 years old. I was diagnosed with Lupus in 2018, and a year later had to stop working as a MA because my health got worse. A little after...