My Lupus Story: The Pain
Well, I have had Lupus for 35 years.
What is lupus?
My daughter was 10 when I was diagnosed I went to my primary care doctor because I was so tired and in pain. He did a lot of blood work and it came back, and I had never heard of Lupus. My question to him was, "will it kill me?" His answer, "no, we have a lot of medicine that we can give you."
Waiting for a rheumatologist
That began my journey of taking a million pills a day until I could see a rheumatologist which was 4 months, but the pain was so bad. I had to go to work and I never stopped hurting. I finally saw my rheumatologist who did more blood work and gave another round of meds.
What not to say to someone living with lupus
I thank God that I have a family who knows that when I hurt, I need to take my meds and rest. The thing that gets me is when I tell my friends that I am hurting, they say, "me too," or "it won't last long."
But I get up and do what I can do and save the rest of the week.
Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?
Have you been diagnosed with fibromyalgia?