4A's Sisters Lupus ClubAdvocates for Lupus are us 4 Sisters here in Louisiana. Once the 3 sisters' biological mother passed at an early age of 30 in late 1965, leaving six kids to... By bandrus51 min readBookmark for laterReactions 0 reactions Comments1 comments
Finally Finding A Lupus CommunityHi all, I am going to tell you right away that I am not a USA citizen. I live in Europe, close to Brussels, which is considered it's capital by... By BieBie6 min readBookmark for laterReactions 0 reactions Comments4 comments
Nerve PainHi, for many weeks now, I seem to be suffering from something I can only describe as nerve pain at night. This keeps me awake most of the night it... By Cazmarglom1 min readBookmark for laterReactions 0 reactions Comments4 comments
Renae's StoryI wasn’t diagnosed until I was 30, but I have had symptoms since I was 10 yrs old. All the other kids got to go to town to the pool... By Renae1 min readBookmark for laterReactions 0 reactions Comments1 comments
Lupus rashHi sorry to put this, but my feet around my ankle area drives me mad with this rash. It goes up the back of my ankle and on top of... By Cazmarglom1 min readBookmark for laterReactions 0 reactions Comments6 comments
My Skin Is What Got Me TestedI was officially diagnosed with SLE early this past November, although it had been suspected by doctors for about a year. I am 66 years old and have been suffering... By Tim McMillan1 min readBookmark for laterReactions 0 reactions Comments7 comments
No Support SystemI was diagnosed with lupus in October 2019 and it’s been rough. Every time I try and explain it to a few family members and especially my husband. He thinks... By CommunityMember34859d1 min readBookmark for laterReactions 0 reactions Comments8 comments
Still No DiagnosisI have been suffering for many years with lots of symptoms... They keep telling me I have fibromyalgia. I have been seen by a rheumatologist who told me that it... By Cazmarglom1 min readBookmark for laterReactions 0 reactions Comments1 comments
I Never Thought…I’m a 62-year-old white male. For the last 17 years, I’ve been treated with multiple surgeries on my spine, from my neck to my lumbar. The doctors thought it was... By Joel Knight1 min readBookmark for laterReactions 0 reactions Comments3 comments
Multiple Autoimmune ConditionsI was diagnosed with MS in August 2007 at the age of 60. Then 2 months later, I was diagnosed with Lupus. I also have Sjogren's syndrome, Fibromyalgia, Arthritis, and... By CommunityMember95116a1 min readBookmark for laterReactions 0 reactions Comments3 comments
Still Waiting for My DiagnosisI've been ill for years with joint pain, inflammation and loads of other things... The doctor keeps saying it's just my fibromyalgia. I'm having so many flares at the moment... By Cazmarglom1 min readBookmark for laterReactions 0 reactions Comments1 comments
Another Lupus Skin Flare?I was diagnosed with Systemic Lupus erythematosus in January this year. Since then I've had better days and worse days. Lately, my skin has been so itchy. When I scratch... By Lizzi1 min readBookmark for laterReactions 0 reactions Comments1 comments
Life with Lupus 22 Years & CountingLiving with life after finding out I had lupus has changed my life for the worse. My family life is not what it used to be, and my husband acts... By MrsMurray741 min readBookmark for laterReactions 0 reactions Comments6 comments
15 Years & Still Going StrongAfter being diagnosed in 2008, I spiraled out of control and so did my marriage. My body was fighting against me, and my husband didn't understand me. Spending month after... By Smccray11 min readBookmark for laterReactions 0 reactions Comments1 comments
Lupus SucksFirst, they thought I had environmental poisoning. I was finally diagnosed after another 5 years of going to different doctors, just for all of them to say "I don’t know... By Feathers691 min readBookmark for laterReactions 0 reactions Comments1 comments
Waiting With LupusHi. My is Dannette Johnson Dobey. I have Lupus also. It's been about 9 years now since being diagnosed. It's no joke. Every part of me hurts every day. I... By CommunityMember20851 min readBookmark for laterReactions 0 reactions Comments4 comments
I Had LupusIn 2017 I was diagnosed with Antiphospholipid Syndrome (APS) and Lupus. As I was reading on the internet (I know they don't like us to do that) I read that... By Squeak1 min readBookmark for laterReactions 0 reactions Comments1 comments
Twenty-five DoctorsIt took me 15 years and 25 doctors to get diagnosed. I had many erroneous diagnoses along the way, and was thrown out of a Dr office as a hypochondriac... By Charlie773541 min readBookmark for laterReactions 0 reactions Comments2 comments
My Tough YearI was first diagnosed with diabetes in September 2021. Then, in February I was diagnosed with rheumatoid arthritis and Lupus. It's been very tough for me. I was told in... By CommunityMember13871 min readBookmark for laterReactions 0 reactions Comments4 comments
Not Knowing My True DiagnosisI was diagnosed in February.. it was finally the right diagnosis. After years of pain, headaches, low platelets, joint stiffness, wrist pain and wearing wrist braces for support. I was... By CommunityMember13871 min readBookmark for laterReactions 0 reactions Comments3 comments