Stories

It is spring here in New Zealand and my garden is full of roses daisies & foxgloves bees bumble bees & birds- it is a joy to go out into...

I just read about two medications... belimumab and anifrolumab. Is anybody taking these meds, they seem to have severe side effects. Is anybody getting great results from these drugs? Is...

Diagnosed with Lupus in 2012 after the loss of my son. My ex-husband stated I wasn't doing enough to take care of myself due to Lupus. We divorced recently and...

OK I have found out in this past month. My lupus has also effected my eyes. I now have Macular degeneration, did you guys know that lupus gives you that?...

Hello I’m 29 years old I was diagnosed with lupus when I was 22. I’ve been healthy my childhood and teen life, I played basketball my high school year and...

I broke out with a rash on April 22 2023. My doctor tested for everything. They asked me if I had ever been tested for lupus. I said no, but...

Hey everyone, I was recently diagnosed with lupus due to symptoms. But all blood work results, etc. have come back negative. Does anyone else have this? Yet, on an almost...

I've been experiencing lupus symptoms for a while now. It started with itchy skin, followed by joint pain and inflammation that gradually became more frequent. I began experiencing extreme fatigue...

I broke out with a skin rash on April 22. I couldn't keep anything down at the time and still can't. I feel itchy all night. That's when they decided...

At the end of last July, I had a very difficult breakup. Just weeks later, I was in the hospital, so sick I was sure I was on my deathbed...

I am about to enter month 5 after receiving my lupus diagnosis. I will, again, be going to the Doctor, as my legs are not doing well. Both of my...

Hi I’m Saundra, I have had my SLE diagnosis for 43 years now. I am 63 years old. There is nothing on my body that lupus has not effected. Starting...

I was diagnosed with SLE a little over a year ago. At the time I was also diagnosed with Sjogrens and Alopecia... This story isn't about my diagnosis though. After...

I have the worst-case scenario of lupus... lupus as well as a brain tumor. The lupus has caused severe pain in my body, emotionally, spiritually, and physically. The rheumatoid arthritis...

I've suffered since 2004 with joint pain and muscle spasm’s. A hug hurt. My grandson was two and when he would run to say hi and give me a hug...

Still no diagnosis for me... I have even given up going to my GP as it's just a waste of time as they don't seem to believe me and dismiss...

I was diagnosed in 2015 RA to only learn that I have SLE Lupus. I just turned 61 on Sunday, I am just starting to experience different issues. I find...

I have a question more than a story, I have people reaching out to me wanting me to try new things and while that is fine, I am absolutely skeptical...

Hello, I have been diagnosed with SLE lupus since 15 years old. I am now 37 as of yesterday. I am very blessed to be alive still and strong. I...

I have just been diagnosed three weeks ago that I have lupus. Three years ago I had deep vein thrombosis and was put on treatment that I completed after six...