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Read conversations, start a discussion, and connect with others about Lupus.

FeaturedActive 5 days ago

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Featured

Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Active today

How to deal with the flushes of heat and pain on each side of my head?

Active today

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I don't have friends or family nearby and people...

Active today

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

Active yesterday

Protecting Your Peace

The holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...

Active yesterday

Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist pain and a finger that is buckling that...

Active 2 days ago

Does this seem like a malar rash due to lupus?

Hello, My daughter has been presenting with this facial rash. Dermatologist said it is rosacea. Her ANA panel came back negative. But this seems to get worse and nothing helps....

Active 2 days ago

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Active 3 days ago

What Have You Learned

We all can learn something daily about those around us and ourselves. As you walk on your lupus journey, What have you learned about yourself that you never knew?...

Active 4 days ago

Rest is the only answer!

When I get a flare, which are much worse in the summer months! The only thing that really helps is rest! Family really don’t understand and still expect you to...

Active 4 days ago

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

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