FeaturedActive 2 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments226 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active yesterdayChest Tightness from Sun ExposureAnyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors, during the Sun's peak hours between 10 am...Reactions0reactionsComments32 repliesAnxietyFatigueSun Sensitivity
Active yesterdaybenlystai did 4 treatment of the iv infusion and lost all my hair and Im devestated and my doctor said it wasnt that and i told her im not taking...Reactions0reactionsComments5 repliesAwareness
Active 2 days agoWhen to go to the ER.... I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...Reactions0reactionsComments26 repliesSymptomsDiagnosisTreatment
Active 2 days agoRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions0reactionsComments107 repliesCopingJoint PainSymptoms
Active 5 days agoTriggers for FlaresSometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...Reactions0reactionsComments106 repliesButterfly RashFatigueSun Sensitivity
Active 8 days agoHip PainDoes anyone have trouble with hips aching?...Reactions0reactionsComments54 repliesSymptoms
Active 8 days agoCan't get out of this flareDoes anyone else have any issues with getting out of a flare. I was diagnosed a yr ago with Lupus but have been in denial. I went to Fl to...Reactions0reactionsComments13 replies
DiagnosisI am newly diving in to the possible diagnosis of Lupus. I have MANY correlating and debilitating symptoms. My pcp has ordered lab work and it is pending. I have...Reactions0reactionsComments2 replies
New member "Thank you" for having me 🤗Hello Members, I was diagnosed with SLE & SCLE in 2008 with also Secondary Sjogren's syndrome & Raynaud's phenomenon. Having a past health history of other health conditions & over...Reactions0reactionsComments0 replies