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Active today

"Planned Underachievement"

Extreme fatigue was one of the symptoms (along with Raynaud's and sunlight sensitivity) I had when first diagnosed with Lupus about 10...

Active 3 days ago

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active 4 days ago

Has anyone bled postmenopausal?

Could anyone help me with this? I'm 51 and just had bleeding after 2y of not having a period. It started on...

Active 4 days ago

COVID19

Has anyone with lupus survived COVID-19?...

Active 4 days ago

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I...

Active 4 days ago

Simple joys or special occasions?

It definitely felt like a long, gloomy winter for most of us. What is one small comfort or event you are looking...

Active 6 days ago

Always sick

Does anyone else's family always complain about you being sick?? If I can't go somewhere if I'm sick and they just don't...

Active 6 days ago

What do I tell my Boss

At work I am constantly overwhelmed and not sure what to tell my supervisor, when I’m good to do my job but...

Active 6 days ago

Should I start methotrexate?

I’m 77 - have had three major joint operations in this past year; left rotator cuff, left partial hip replacement (not a...

Active 6 days ago

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

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