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Read conversations, start a discussion, and connect with others about Lupus.

Is there a connection between narcolepsy and lupus?

I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so tired and that if I sit or lay...

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Rarely seem totally well

I have lupus (SLE) and I am on Rinvoq (immunosuppressant) and Hydroxycholorquine for over a year now. I tried Methotrexate (4 days a week in bed) and Imuran (fatigue, mouth...

LUPUS

LUPUS is a "ghost" ailment. I feel terrible inside. I wish I could wish it away. The symptoms are so uncomfortable. Hands ache or throb constantly, loss of balance, alopecia...

Cold Weather

I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times a month. I had no idea I'd have...

Fatigue!

There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up and getting out of bed. My days start...

Can't get out of this flare

Does anyone else have any issues with getting out of a flare. I was diagnosed a yr ago with Lupus but have been in denial. I went to Fl to...

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do you guys ever get tongue tied? I physically...

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