Is there a connection between narcolepsy and lupus?I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so tired and that if I sit or lay...Reactions0reactionsComments3 repliesFatigue
Triggers for FlaresSometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...Reactions0reactionsComments104 repliesButterfly RashFatigueSun Sensitivity
Rarely seem totally wellI have lupus (SLE) and I am on Rinvoq (immunosuppressant) and Hydroxycholorquine for over a year now. I tried Methotrexate (4 days a week in bed) and Imuran (fatigue, mouth...Reactions0reactionsComments1 repliesFatigue
LUPUS LUPUS is a "ghost" ailment. I feel terrible inside. I wish I could wish it away. The symptoms are so uncomfortable. Hands ache or throb constantly, loss of balance, alopecia...Reactions0reactionsComments2 repliesFatigueSymptoms
Cold Weather I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times a month. I had no idea I'd have...Reactions0reactionsComments16 repliesJoint PainWeatherFatigue
Fatigue!There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up and getting out of bed. My days start...Reactions0reactionsComments1 repliesFatigueCoping
Can't get out of this flareDoes anyone else have any issues with getting out of a flare. I was diagnosed a yr ago with Lupus but have been in denial. I went to Fl to...Reactions0reactionsComments6 replies
What do you do?Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...Reactions0reactionsComments14 repliesCopingSleep
Hello!Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...Reactions0reactionsComments4 repliesAnxietyBrain FogCoping
3 Questions - Do You Relate?"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do you guys ever get tongue tied? I physically...Reactions0reactionsComments8 repliesSleepMental HealthBrain Fog