Feeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...Reactions0reactionsComments88 replies
What have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...Reactions0reactionsComments120 repliesAwareness
Coping Depression loneliness falling Yup fell don't know what happened it was like I passed out. Im having so much fun not really. Thank you so much for making me feel...Reactions0reactionsComments6 replies
Sun & LupusWhat's the best sunscreen ,I currently have Sun Bum and am going to the Dominican ....Reactions0reactionsComments18 repliesSun Sensitivity
Cant get out of this flareDoes anyone else have any issues with getting out of a flare. I was diagnosed a yr ago with Lupus but have been in denial. I went to Fl to...Reactions0reactionsComments1 repliesFatigueSun SensitivitySymptoms
Discontinue medsI have had Lupus for about 12 years. My doctor took me off of Imuran because of cirrhosis secondary to NASH. I take Plaquenil. I’ve been to a gastroenterologist, test...Reactions0reactionsComments9 repliesTreatment
Chest Tightness from Sun ExposureAnyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors, during the Sun's peak hours between 10 am...Reactions0reactionsComments23 repliesAnxietyFatigueSun Sensitivity
Lupus Plus: Do you have additional health issues?What are other health issues you face besides your lupus diagnosis?...Reactions0reactionsComments101 repliesDiagnosis
Coping New autoimmune disease I can't do this anymore. Im tired of the fight i spend more time to bed then not. Just diagnosed with another very rare autoimmune disease colongenous...Reactions0reactionsComments8 repliesDepressionCoping
Brain FogI have such a difficult time in the store staying focused to follow my list. I have gone to my car and cried because I can't figure out what I...Reactions0reactionsComments3 repliesBrain Fog