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Read conversations, start a discussion, and connect with others about Lupus.

Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a barrel. Feel awful, weak in the knees....

My horrible journey with Lupus

Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely traumatizing exhausting journey until I finally able to get a proper diagnosis and a proper test...

Is this a malar rash?

Hello! I was tested for lupus 8 years ago as I had a series of symptoms that were growing concerning, and my mother has lupus. Tests proved negative. 3 years...

Hip Pain

Does anyone have trouble with hips aching?...

It's Giveaway Time!

Enter for a chance to win a cooling weighted blanket and wireless sleep headphones to help you achieve better sleep! Get more details about the giveaway here.

Tattoos

Hello, I want to get another tattoo I've done a lot of research but just wanted to see what real people had found getting a tattoo with Lupus? Thanks...

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors, during the Sun's peak hours between 10 am...

benlysta

i did 4 treatment of the iv infusion and lost all my hair and Im devestated and my doctor said it wasnt that and i told her im not taking...

When to go to the ER....

I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...

Diagnosis

I am newly diving in to the possible diagnosis of Lupus. I have MANY correlating and debilitating symptoms. My pcp has ordered lab work and it is pending. I have...

BENLYSTA

I am wondering if there's anyone on the medication BENLYSTA? And what side effects you experiencing. My son's doctor is recommending it take it. When I read, side effect being...

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