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Read conversations, start a discussion, and connect with others about Lupus.

tremors

Has anyone ever gotten tremors? Twice now, I have gotten tremors that were like my whole body getting the shakes uncontrollably, and...

Invisible Disability Discrimination

For those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing...

Micardis/Telmistartin

Has anyone had any experience with hypertension and been put onto this medication and had side effects or weight gain/weight loss?...

Eyebrows

I have Permanent hair loss on my eyebrows, looks like alopecia, I had permanent make up done before I was diagnosed with...

Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist...

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here...

Cutaneous lupus

I have both systemic and cutaneous lupus. I’m wondering if anyone else out there with cutaneous lupus experiences skin shedding. I periodically...

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...

Severe headaches for years

Has anyone found relief from the severe headaches besides steroids?...

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