Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Cant get out of this flare

Does anyone else have any issues with getting out of a flare. I was diagnosed a yr ago with Lupus but have been in denial. I went to Fl to...

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do you guys ever get tongue tied? I physically...

Say it to yourself

If you could tell your pre-diagnosis self something that can help you today, what would it be?...

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...

Nobody Gets It

Sometimes I feel like a little old lady or a broken record when I hear myself saying my head hurts, or my back hurts, or my elbow hurts, or whatever...

Bullous Systemic Lupus Erythematosus

I was diagnosed with Lupus (SLE) several years ago. Almost 3 months ago, I had an outbreak of blisters appear on my face AND my vulva. The doctor also said...

Is this a malar rash?

Hello! I was tested for lupus 8 years ago as I had a series of symptoms that were growing concerning, and my mother has lupus. Tests proved negative. 3 years...

Vivid, nightly, disturbing dreams

I have had Lupus all my adult life, now aged 87, was put in Depression bóx' in my 30's and was not correctly diagnosed until i was in my 60's...

Categories

Select a category to find topics that interest you.