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Read conversations, start a discussion, and connect with others about Lupus.

Change in Diagnosis from LUPUS to MCTD

I was diagnosed with Lupus in 2002. I began taking hydroxychloriquine. In 2010 I moved to another state, and the rheumatologist redid all my testing to make his own diagnosis...

When to go to the ER....

I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors, during the Sun's peak hours between 10 am...

Undiagnosed and meeting with primary care. Feeling nervous.

Hello. I have had odd symptoms on and off over the years but recently I put them all together and now wonder if it could be lupus. I'm hitting many...

Sjogrens

I have had lupus for 6 years which my rheumatologist assures me is sub cutaneous and is not systemic. In the last 6 month I have suffered from dry eyes...

Developing Lupus?

My wife has had many odd issues over the last 20+ years. Always going to the doctor and getting referred to a specialist and never finding anything wrong. Then Her...

Recovery After holidays

What are your recovery techniques after the holiday? What do you do to get back to a normal routine?...

Too long to tell..a very difficult disease

The madness of systemic lupus is incredibly complicated....

Swollen face and hands

My daughter has Lupus her face and hands or swollen she in pain all the time can you please help....

Traveling with Lupus

The holidays can be a time of fun, but can also be physically and mentally exhausting. Not all folks living with a chronic health condition are able to safely travel...

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