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Forums

Read conversations, start a discussion, and connect with others about Lupus.

What do I tell my Boss

At work I am constantly overwhelmed and not sure what to tell my supervisor, when I’m good to do my job but some days it takes me a little longer...

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...

Severe headaches for years

Has anyone found relief from the severe headaches besides steroids?...

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I thought that's what was causing it so if...

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...

After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after recovering from a flare?...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Nausea

I was diagnosed with Lupus in 1998,but I have been very nauseous for the past 2 weeks. Does anyone know what it could be...

Lupus pain

Does anyone get pain in right side of chest and neck?? Ive been totally checked for heart stuff so don't know what this is bit it happens all the time...

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