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Read conversations, start a discussion, and connect with others about Lupus.

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

How to deal with the flushes of heat and pain on each side of my head?

Rest is the only answer!

When I get a flare, which are much worse in the summer months! The only thing that really helps is rest! Family really don’t understand and still expect you to...

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Featured

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Anifolumab for SLE

Anifrolumab I was diagnosed with lupus in 2023 but my first flare (which was ignored at the time) was in 2000. I recently found a new rheumatologist and almost didn’t...

Chemically indused stress test

Had chemically indused stress test and went to er. My arms and legs were jumping up and down, heart racing from 72 to 124 every 30 seconds for hours,chest pain...

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...

Lip Rash

I have only ever had the signature butterfly rash on my face once. That was the start of the diagnosis for me. But I have had an unusual rash on...

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