What have you learned?
What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?
You may be walking alone and actually I was abandon when I got sick everyone left me and support groups are my family and friends whom I use for help. My own mom actually thinks I made it up researched it to use it for an excuse convenient she said.
I just make sure to take my meds and drink plenty of water to help and I always try to lay down and rest not nesaserly sleeping but just putting my feet up and relaxing some times helps
I am so sorry for you Because Family can be the worst People I was diagnosed with Lupus 3YRS. I . KNOW how People can be If need some to talk to just email me Okay Take of your self
I have learned not everyone has the butterfly rash,Lupus affects everyone different,my Lupus is arthritis. My rheumatologist says I have Lupus Arthritis.🙋🏾♀️💜
I was told that a flare would need your doctors attention, or are you hurting from stiffness etc.? ,
Flares can range from mild to severe.
Each individual may have a different reaction.
At times, flares may require a change in treatment, so it is important to communicate with your doctor if you suspect a severe flare.
This article may provide some helpful information: https://lupus.net/triggers-flares
~Doreen (Team Member)
To take advantage of good days.
, So true, even the good moments in the day. There can be so many ups and downs in just one day alone! Thanks for chiming in
Gabby (team member)so Important. Take advantage of them but don’t overdo it is my motto. Great point. ~Racquel~ lupus.net team member
