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What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?

  1. You may be walking alone and actually I was abandon when I got sick everyone left me and support groups are my family and friends whom I use for help. My own mom actually thinks I made it up researched it to use it for an excuse convenient she said.

    1. , oh, goodness. I am so very sorry that your family has doubted your diagnosis and isn't supporting you. I wish every person had the love and support they need.

      Gentle Hugs, Erin, Team Member.

    2. I’m so sorry that has happened to you. Thankfully you’ve found support. Sending hugs.🤗

  2. I have learned not everyone has the butterfly rash,Lupus affects everyone different,my Lupus is arthritis. My rheumatologist says I have Lupus Arthritis.🙋🏾‍♀️💜

    1. I just read about that the other day. I have Lupus, RA and osteoarthritis. I’m not always sure if I’m having a flare up of Lupus or RA. Then I wonder is it just osteoarthritis, like there’s such a thing of JUST osteoarthritis!

    2. ,
      Juggling all three cannot be easy...as some of their symptoms can certainly mimic each other.
      It must be difficult to decipher one from another.
      ~Doreen (Team Member)

  3. Take care of me first always.

    1. ABSOLUTELY!!

    2. spot on!!!!! ~Racquel ~ lupus.net team member

  4. To take advantage of good days.

    1. , So true, even the good moments in the day. There can be so many ups and downs in just one day alone! Thanks for chiming in
      Gabby (team member)

    2. so Important. Take advantage of them but don’t overdo it is my motto. Great point. ~Racquel~ lupus.net team member

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