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Read conversations, start a discussion, and connect with others about Lupus.

Ssi/ssdi

What does a doctor look for or how do you ask your rheumatologist to dx you as disabled when applying for disability....

Hair loss

My daughter’s been diagnosed with stage 2 lupus and along with other issues she is suffering hair loss. I wondered if anyone...

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Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a...

Toenail Issues

Anyone have toenail issues with lupus? Do your toenails grow thick and eventually fall off? if so, how do you handle it?...

Vaccines

I have had Lupus for 15 years and have been on a pretty even keel since retiring. I am getting ready to...

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...

Universal Studios

I am about to go to Universal Studios with my family. I am so worried I will not be able to keep...

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Perception Change

How has your perception of lupus changed over time?...

Stay positive and keep stress to a minimum

I got Lupus at 68 now 3yrs. I was fortunate to have Drs who diagnose quickly. Im taking a infusion every 28...

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