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Read conversations, start a discussion, and connect with others about Lupus.

LUPUS

LUPUS is a "ghost" ailment. I feel terrible inside. I wish I could wish it away. The symptoms are so uncomfortable. Hands ache or throb constantly, loss of balance, alopecia...

Cold Weather

I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times a month. I had no idea I'd have...

Fatigue!

There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up and getting out of bed. My days start...

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do you guys ever get tongue tied? I physically...

Say it to yourself

If you could tell your pre-diagnosis self something that can help you today, what would it be?...

Nobody Gets It

Sometimes I feel like a little old lady or a broken record when I hear myself saying my head hurts, or my back hurts, or my elbow hurts, or whatever...

Bullous Systemic Lupus Erythematosus

I was diagnosed with Lupus (SLE) several years ago. Almost 3 months ago, I had an outbreak of blisters appear on my face AND my vulva. The doctor also said...

Is this a malar rash?

Hello! I was tested for lupus 8 years ago as I had a series of symptoms that were growing concerning, and my mother has lupus. Tests proved negative. 3 years...

Vivid, nightly, disturbing dreams

I have had Lupus all my adult life, now aged 87, was put in Depression bóx' in my 30's and was not correctly diagnosed until i was in my 60's...

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