After Flare Self-Care
It's hard sometimes to bounce back after flaring for a period of time.
What are some of your essential self-care needs after recovering from a flare?
I'm usually so tired after a flare. So, I def usually try to get as much sleep as possible. Those afternoon naps help so much.
-Geri (lupus.net, team member)
Yes, I sleep in late at times and have to nap when the fatigue is extreme. A cup of relaxation tea Honey Lavender or Blueberry Sage by Yogi and a comfy murder mystery makes me sleepy. Also I do leg stretches & breathing in bed, this helps. I was diagnosed in 2002 and still have to adjust to my fatigue & flare up moments. Hope this helps.I honestly haven't tried different hot teas.
I am trying to deal with this but I'm really tired of being tired...I'm really sick of being sick...I eat when I'm hungry...I sleep when I'm tired... don't really know any other way to handle this sometimes
I understand exactly how you feel. lupus is so difficult and can wear us down. I'm happy you are here with others that understand. I can tell you this, you will have these rough moments and the only think you can do is rest and that's okay. I'm sending you gentle hugs. Thanks for sharing this difficult part of this lupus journey. ~Racquel~ lupus.net team member. 💜🦋 I need the encouragement and support. I never realized there are places like this existed
I was diagnosed a year ago but I really think I have had it for years. I just finally found a doctor that listened to me and tested me correctly. So needless to say I am reading books, joining sites and groups to help me understand. I look forward to chatting with everyone
Oh. Someone told me that carbohydrates cause flare ups?welcome. I'm glad you found us. A wealth of information and support. It's so good you have a doctor that listens and cares. It's so important to have a good treatment team in your corner. Carbs definitely play a role in inflammation here is a great article that discusses that https://lupus.net/living/diet-considerations
It has helped me to keep a food journal to see what foods affect me. It's good that you know now. ~Racquel~ lupus.net team member
Oh wow Last night I had a Soda and I was so sick and cold I want to read but I was so cold I wrapped in my blankets and went to sleep
I just got diagnosed but have had this for at least 15 years. It got to the point where I've been in bed or on the couch a good 75% of the time these last couple years. Still not treated and waiting to see a Rhuematologist.These last 4 months were darn near unbearable, fatigue, nausea, vomiting sweating and chills pain so bad I could walk. Not life not dealth just somewhere in between and unable to go in either direction.
Hello @wandawow111 Lupus is really such a struggle and I'm sorry to hear that these last few months have been even harder. Please know that we are all here to support you. I hope you are able to see a rheumatologist soon! - Geri (lupus.net, team member)
Wow I know how that can be because I was diagnosed in 2022 and I had to find a Doctor who would treat me but I only had to wait Four months I Pray that you get treated real soon I sent out my love to you and my Hugs
