FeaturedActive 6 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments195 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active todayShame and GuiltDo you have shame or guilt when needing to rest?...Reactions0reactionsComments118 repliesCoping
Active todayConstant fatigue Daily, I am extremely tired. Does anyone have tips to help?...Reactions0reactionsComments129 repliesFatigue
Active todayLupus Life HacksAre there any lupus life hacks that you think every lupus warrior should know? One of my most important lupus life hacks is keeping a food, mood, and symptom journal...Reactions0reactionsComments3 repliesCoping
Active todaycoughingI have a chronic cough and after many doctor appointments, noone can find the cause. Has anyone else been dealing with such a cough?...Reactions0reactionsComments0 repliesTreatment
Active todayDeveloping Lupus?My wife has had many odd issues over the last 20+ years. Always going to the doctor and getting referred to a specialist and never finding anything wrong. Then Her...Reactions0reactionsComments4 repliesDiagnosis
Active yesterdayKeeping personal journal to learn about flaresI was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...Reactions0reactionsComments0 replies
Active 3 days agoRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions0reactionsComments74 repliesCopingJoint PainSymptoms
Active 3 days agoConnection Between Lupus and Low Sex Drive?At age 49, I started feeling really bad. I gained over 30 pounds in 3 months with no changes in my eating habits. I usually only eat a small breakfast...Reactions0reactionsComments10 repliesDating & Intimacy
Active 4 days agoAm I the only one that feels guilty for not being able to work?Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I don't have friends or family nearby and people...Reactions0reactionsComments88 repliesWork & Employment