FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...reactions239repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...reactions6repliesCaregiving
Active todayAltered Senses From LupusHas anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...reactions75replies
Active todayAm I the only one that feels guilty for not being able to work?Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I don't have friends or family nearby and people...reactions150repliesWork & Employment
Active todayDry mouth with watering Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I thought that's what was causing it so if...reactions96repliesSymptoms
Active yesterdayFamily SupportHow do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus is real and can affect you instantly without...reactions78repliesFriends & Family
Active yesterdayUniversal StudiosI am about to go to Universal Studios with my family. I am so worried I will not be able to keep up or endure the heat and the walking...reactions1replyTravelFatigueTips & Advice
Active yesterdayWhat have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...reactions203repliesAwareness
Active yesterdayVaccinesI have had Lupus for 15 years and have been on a pretty even keel since retiring. I am getting ready to travel to Europe and got both my flu...reactionsrepliesSymptoms
Active yesterdaySun & LupusWhat's the best sunscreen ,I currently have Sun Bum and am going to the Dominican ....reactions36repliesSun Sensitivity
Active 3 days agoConstant fatigue Daily, I am extremely tired. Does anyone have tips to help?...reactions169repliesFatigue
Active 3 days agoShame and GuiltDo you have shame or guilt when needing to rest?...reactions209repliesCoping