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Read conversations, start a discussion, and connect with others about Lupus.

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...

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Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a...

Active today

Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist...

Active 3 days ago

After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after...

Active 3 days ago

How to deal with the flushes of heat and pain on each side of my head?

Active 6 days ago

Knee replacement

Wondering if anyone with Lupus and fibromyalgia have had a total knee replacement. It is done on outpatient basis now. They have...

Active 7 days ago

Recovery After holidays

What are your recovery techniques after the holiday? What do you do to get back to a normal routine?...

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I...

Shame and Guilt

Do you have shame or guilt when needing to rest?...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as...

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