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Read conversations, start a discussion, and connect with others about Lupus.

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Featured

Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Active yesterday

Lip Rash

I have only ever had the signature butterfly rash on my face once. That was the start of the diagnosis for me. But I have had an unusual rash on...

Active yesterday

Rash

First Lupus rash and I've had lupus for years any tips...

Active yesterday

Could this be a malar rash?

I've had a rash on my face that comes and goes for a few years now. I also have a lot of joint pain and swelling in my wrist and...

Active yesterday

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Active yesterday

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

Active yesterday

Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist pain and a finger that is buckling that...

Active yesterday

Pain Is A Ten

I have been dealing, again, with a flare for 2 weeks. Waiting on my Rheumatologist to call me back. My pain is 10 on most days. I know this because...

Active yesterday

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Active yesterday

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...

Active yesterday

Plaqueinal

I find that Plaqueinal makes my thighs ache,is it bad to stop taking it. It does not stop pain....

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