FeaturedActive todayIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments174 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions 0 reactions Comments5 repliesCaregiving
Active todayRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions 0 reactions Comments39 repliesCopingJoint PainSymptoms
Active todayHip PainDoes anyone have trouble with hips aching?...Reactions 0 reactions Comments47 repliesSymptoms
Active todayHair thinning Has anyone experienced thinning hair on one side? I know hair thinning is typical for older women but this started when I started having lupus symptoms about 10 yrs ago...Reactions 0 reactions Comments6 repliesSymptoms
Active yesterdayAltered Senses From LupusHas anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...Reactions 0 reactions Comments20 replies
Active 2 days agoBrain fog and low energyHi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...Reactions 0 reactions Comments2 repliesFatigueJoint PainSymptoms
Active 3 days agoGo to exerciseIf you can exercise what is your go to exercise? What movement gives you endorphins big enough that you feel a little better?...Reactions 0 reactions Comments0 repliesExercise
Active 3 days agoPlaquenil- steroids- Lupus I have had lupus for 8 years diagnosed have been allergic to everything I have been given. so tired of having joint pain and no DR will give me Tramadol...Reactions 0 reactions Comments12 repliesAnxiety
Active 3 days agoShame and GuiltDo you have shame or guilt when needing to rest?...Reactions 0 reactions Comments73 repliesCoping
Active 3 days agoChronic UTI’s & lupus nephritis I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...Reactions 0 reactions Comments16 repliesSymptoms