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Read conversations, start a discussion, and connect with others about Lupus.

Active today

New Brand of Hydroxychloroquine

New brand of hydroxychloroquine doesn't seem to be effective. I am experiencing pain in joints that I have not had with my...

Active today

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

Active yesterday

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active 3 days ago

Cold all the time

Is anyone else suffering from being cold all the time? I am always cold. I wear long sleeves to work, and everyone...

Have dry patch of skin on face

I have had a round patch of really dry skin on face for months that is slightly raised is this lupus related...

Sun & Lupus

What's the best sunscreen ,I currently have Sun Bum and am going to the Dominican ....

Twitches/Muscle Spasms, Losing Grip, and Spatial Awareness?

1. Has anyone else ever experienced muscular twitches - they're not limited to one place, are sporadic, and I've noticed that they...

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...

Lupus causing Pericarditis; attacking the heart area

Anyone dealing with Lupus that has attached the heart area resulting in pericarditis or pericardial effusion? While my condition is currently under...

Feeling Torn - Conflicting Advice from 2 Care Providers

So, I am 6 years into my Lupus Nephritis diagnosis. All along, joint pain and stiffness has been a big side effect...

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