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Read conversations, start a discussion, and connect with others about Lupus.

Brain fog and fatigue

Hi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...

BENLYSTA

I am wondering if there's anyone on the medication BENLYSTA? And what side effects you experiencing. My son's doctor is recommending it take it. When I read, side effect being...

Family Support

How do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus is real and can affect you instantly without...

No insurance no doctor support

My daughter is dealing with lupus and has no insurance and doctors over the years have pretty much ignored her feelings, can't afford treatment, can only work ocassionally, afraid meds...

Spring Time

How is everyone who is coming into spring handling the pollen? Has allergies been bothering you? ~Racquel~ lupus.net team member...

Protecting Your Peace

The holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...

Tattoos

Hello, I want to get another tattoo I've done a lot of research but just wanted to see what real people had found getting a tattoo with Lupus? Thanks...

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...

Take charge

Don't let Dr tell you what to be on you tell them. It's your body and your pain and your lupus journey. It's not there's and your the boss....

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...

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