Active 2 days agoChronic UTI’s & lupus nephritis I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...Reactions 0 reactions Comments17 repliesSymptoms
Active 3 days agoDoctor CareMy rheumatologist will only help with prescribing Mycophenolate and taking blood & urine every 6 months. I'm deathly allergic to Plaquenil or Hydroxycloroquine so all I have is the Cell-Cept...Reactions 0 reactions Comments3 repliesTreatment
Active 3 days agoStaying UpliftedWhat do you all do to stay uplifted? How do you combat the depression that can come with dealing with lupus? ~Racquel~ lupus.net team member...Reactions 0 reactions Comments40 repliesDepression
Active 4 days agoInvisible Disability DiscriminationFor those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing you are disabled because when they see you...Reactions 0 reactions Comments8 repliesTips & AdviceInsurance & Disability
Active 4 days agoMouth sores/ulcersOne of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to two weeks. They are extremely painful and nothing...Reactions 0 reactions Comments81 repliesSoresSymptomsTreatment
Shame and GuiltDo you have shame or guilt when needing to rest?...Reactions 0 reactions Comments77 repliesCoping
Could this be a malar rash? I've had a rash on my face that comes and goes for a few years now. I also have a lot of joint pain and swelling in my wrist and...Reactions 0 reactions Comments1 replies
What phrases are you tired of hearing?When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...Reactions 0 reactions Comments43 repliesCopingAwarenessFriends & Family
Anyone else having balance issues or TIA's? This question comes from the community member Mrschp: "Has anyone ended up with balance issues? Over the past two months, I have fallen four or five times. I can't remember...Reactions 0 reactions Comments3 repliesSymptoms
Constant fatigue Daily, I am extremely tired. Does anyone have tips to help?...Reactions 0 reactions Comments85 repliesFatigue