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Forums

Read conversations, start a discussion, and connect with others about Lupus.

Active 4 days ago

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Active 5 days ago

Shortness of breath and fatigue

My bloodwork is all fine and so are my lungs but I still get out of breath for stupid things and also wit that comes fatigue. Does anyone else have...

Active 5 days ago

Brain fog and fatigue

Hi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...

Active 6 days ago

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

It's Giveaway Time!

Enter for a chance to win a cooling weighted blanket and wireless sleep headphones to help you achieve better sleep! Get more details about the giveaway here.

Active 7 days ago

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...

Hand pain

Hi everyone, Does anyone suffer from constant hand pain? My hands constantly hurt! My knuckles are getting big and I have a hard time holding onto things. I've had xrays...

Medicare

After turning 65 I found out that people who are on Medicare cannot get benefits from Benlysta Co-pay assistance. Does anyone else have this problem and if so please tell...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Rheumatoid arthritis and Lupus

Hey! I've been diagnosed with Rheumatoid arthritis and Sjogrens for 15 years. I'm in a pretty bad flare right now. My pain has always beem tendon pain. Achilles tendonitis, carpal...

Staying Uplifted

What do you all do to stay uplifted? How do you combat the depression that can come with dealing with lupus? ~Racquel~ lupus.net team member...

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