Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Active 5 days ago

Perception Change

How has your perception of lupus changed over time?...

Active 5 days ago

Stay positive and keep stress to a minimum

I got Lupus at 68 now 3yrs. I was fortunate to have Drs who diagnose quickly. Im taking a infusion every 28 days Saphnelo. It works great but you still...

Active 5 days ago

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...

Active 6 days ago

Recommend Centre of Excellence or Consultant

Hi my daughter is 30 and has been diagnosed with Lupus for some time now . My wife and i are very concerned how badly she is been affected by...

Active 8 days ago

What are the terms to find a supportive partner

Hi Anyone who diagnosed with lupus as a kid and grew up with it and now got married.. how did you say to your partner about the lupus and it's...

State disability

How do you all feel about State disability? I’m trying for myself, but was turned down two times . I will be seeing a judge in June I also been...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Cutaneous lupus

I have both systemic and cutaneous lupus. I’m wondering if anyone else out there with cutaneous lupus experiences skin shedding. I periodically, almost like a lizard, go through periods when...

Recommend Centre of Excellence or Consultant

Hi my daughter is 30 and has been diagnosed with Lupus for some time now . My wife and i are very concerned how badly she is been affected by...

Rarely seem totally well

I have lupus (SLE) and I am on Rinvoq (immunosuppressant) and Hydroxycholorquine for over a year now. I tried Methotrexate (4 days a week in bed) and Imuran (fatigue, mouth...

Categories

Select a category to find topics that interest you.