Active 5 days agoDocumentary Hi, I just watched a documentary called Pain Warriors on Prime. I can totally relate! The medical profession has failed alot of us with chronic pain issues! I recommend watching!...Reactions 0 reactions Comments3 repliesAnxietyDepressionMental Health
Active 5 days agoRecently Diagnosed. Constant Wrist Pain - Any Help?I'm a Nigerian recently diagnosed with lupus. I have this constant wrist pain that has refused to go away despite taking NSAIDs. Any help...Reactions 0 reactions Comments10 repliesSymptoms
Active 5 days agoTwo of our mothers pass away with Lupus!More ways to keep on moving and sharing our knowledge and wisdom. What else can be done. We host meetings and now zoom. Also, scholarship events. We need more ideas...Reactions 0 reactions Comments0 repliesAwareness
Active 5 days agoHi all. I need advice with Anti SS-A-RO reading. Mine came back at 91. I’m new to this site. And I would great fully appreciate any advice concerning my very high reading of 91. For my SS-A -RO reading. Currently I’m on Amgevita 40mg...Reactions 0 reactions Comments3 replies
Active 6 days agoLupus or hivesHi I have recently seen a rheumatologist for the first time after symptoms that I thought may be lupus. I keep getting out on antihistamines and steroids. The lumps, rash...Reactions 0 reactions Comments10 repliesSymptoms
My diagnosis 24 years agoMy diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high school. My government teacher saw I was fatigued...Reactions 0 reactions Comments4 repliesCopingDiagnosis
Dealing with SiblingsI was diagnosed in Dec. 2022. It has been a swift and complicated time since then. I have been diagnosed with Stage 2 kidney disease, cyst on kidney, bladder infection...Reactions 0 reactions Comments2 repliesFriends & Family
Tilted Kidneys and diagnosisHi everyone. I’m learning about Lupus, being referred to rheumatologist and my head is in a spin but also making sense why I’ve been so bad for so long. I...Reactions 0 reactions Comments4 repliesDiagnosisDiet & NutritionJoint Pain
A New Hypothesis: Can Moderate Sun Exposure Prevent SLE Flare-Ups?Hi there, I am currently studying the relationship between vitamin D and the immune system, specifically in relation to SLE patients. Despite my research, I have found limited information on...Reactions 0 reactions Comments1 repliesTreatmentResearch & Clinical Trials
I think I may have lupus Hi. I have just come across this site and thought I would join for some advice whilst I was for my drs appointment tomorrow. So for the last probably 8...Reactions 0 reactions Comments7 repliesAnemiaAnxietyButterfly Rash
