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Active 7 days ago

Pain Is A Ten

I have been dealing, again, with a flare for 2 weeks. Waiting on my Rheumatologist to call me back. My pain is 10 on most days. I know this because...

Featured

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Skin sensitivity

Hi Everyone! Sooo i have SLE, as well as a multitude of other autoimmune diseases (I’m basically collecting them like Pokémon now). But, i recently have had intense and painful...

COVID19

Has anyone with lupus survived COVID-19?...

New Brand of Hydroxychloroquine

New brand of hydroxychloroquine doesn't seem to be effective. I am experiencing pain in joints that I have not had with my older hydroxychloroquine. Old pill round marked GG260 new...

How to deal with the flushes of heat and pain on each side of my head?

Brain fog and fatigue

Hi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...

Lupus Awareness

Have you learned anything new about lupus that you didn’t know this lupus awareness month? Is there anything you have learned on your lupus journey that has surprised you?...

Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a barrel. Feel awful, weak in the knees....

Sleep Habits

How well do you sleep at night? What are your tricks to help you sleep better?...

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