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Read conversations, start a discussion, and connect with others about Lupus.

Active 6 days ago

Sleep Habits

How well do you sleep at night? What are your tricks to help you sleep better?...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Digestive problems

Anyone have problems with the digestive track? I have been on antibiotics for about 10 months now and I feel horrible and...

Family Support

How do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus...

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

Always sick

Does anyone else's family always complain about you being sick?? If I can't go somewhere if I'm sick and they just don't...

Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a...

Shortness of breath and fatigue

My bloodwork is all fine and so are my lungs but I still get out of breath for stupid things and also...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I...

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