Sinius problem, hearing problems, feeling awful.
I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a barrel. Feel awful, weak in the knees.
Hey,
!
I am sorry you are dealing with sinus problems. If you are on any immune suppressant treatments to manage your Lupus or other conditions, you are more prone to illness and you may be dealing with some type of sinus infection. I don't want to try to diagnose you over the internet, for your safety, but it definitely sounds like you have some sinus problems that should be addressed.
Sinus problems are not directly a Lupus symptom, but there could be a few reasons you are experiencing this (one that I already mentioned).
Have you been to the doctor about the sinus issues yet?
Best, Erin, Team Member.Not to a sinus doctor, just an ENT. He said I was fine, gave mee Nasacort which did absolutely nothing for 4 months. He didn't know anything about Lupus. , well, that stinks! He sure wasn't thinking outside the box at all, was he?
Best, Erin, Team Member.
Oh goodness. Sinus infections are the worst. My sister and I have a sinus infection every 4-6 weeks at least. They can cause a fullness in your head, feeling like you have a cold, sore throat, difficulty hearing, dizziness(which I always seem to have and being dizzy is one of the worst feelings in the world. I will die on that hill), as well as headaches, and tenderness on your forehead and where your sinuses lay on your face. Along with other symptoms, I’m sure I am forgetting some. If you feel like you have one I would call your dr bc it can need antibiotics to get rid of. I really hope you get to feeling better soon. Sending Big hugs!
Amber RN, BSN, Team MemberI have never had sinus issues before. I went to the ER yesterday(thinking it was heart realated) I haven't been to my 1st heart Specialist yet. For 3 days in a row my dizzy spells got much worse, along with making my balance worse than it usually is, and Migraines, extreme fatigue also was worse. Extremely week. They said all tests were normal. Who should I need to see to find out if Sinus Issues might be my newest addition to my long list of physical issues? 
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I'm sorry to hear about your recent visit to the ER.
It's unfortunate you did not get any answers or relief from your visit.
It sounds like the ER may have ruled out heart issues? Migraines/headaches, along with dizziness, balance issues and fatigue can be caused by a number of issues. Medication can certainly be a culprit along with your body fighting a flare. Additionally sinus issues, inner ear problems, dehydration and migraines can all be an underlying cause.
You may want to follow up with your primary care doctor to discuss your symptoms as well as your ER visit and test results.
Wishing you all the best, Doreen (Team Member)
I finally was able to see a Heart Specialist. He did an ultrasound of my heart. And seemed genuinely concerned about not only heart related issues but my long list of other physical issues. He said to not hesitate to call an ambulance again; but to be sure to request to be taken to a different hospital. Problem with that is, we only have 1 hospital in my city. And I don't have family or anyone else able to get me back home from any of the other nearest hospitals. Fed up with feeling like a burden to the few people who truly care about me
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I'm glad you got in to see the heart specialist.
Besides calling an ambulance/going to a different hospital in the future, did he come up with a "game plan" or a diagnosis?
Did he discuss your current medication or come up with a treatment plan?
Also If he recommends you going to another hospital in the future, please don't feel like you are burdening anyone. Keep in mind many hospitals have services that can help find you a ride home.
Wishing you all the best, Doreen (Team Member)
I made sure to take my list of prescription meds & any OTC meds with me. I have o ly seen him once-but he seemed concerned and willing to try to help if possible. Although I am allergic to all adhesive, we agreed to try some type of heart monitor he wanted it to stay on me for 2 weeks; I had to remove it early-but because of how Lupus is constantly destroying my skin-The stick on monitor was the least invasive option. He also ordered something that I wore & my wrist & finger-it was supposed to monitor me during my sleep for 1 night. I have zero control of sleep. Hopefully I will hear back from him soon; to see what he thinks is the next step.
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It's good to hear that he is concerned and taking steps to find answers.
Hopefully, you'll hear something soon.
Please keep us updated when you get a chance.
~Doreen (Team Member)
