I was diagnosed February 2021.
My family doesn't understand
My family does not understand lupus and won't read about it. They think I complained about daily pain. They think something can be done. I tried to tell them the meds have not kicked in yet.
Understanding over sympathy
They get mad because I don't want to go places and that I need Why Sleep Is Important For People Living With Lupusnaps. I told them I don't want sympathy, I want understanding. My life has been turned upside down since my diagnosis.
Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?
Have you ever had to recover from surgery while living with lupus?