I was diagnosed February 2021.
Family is not supportive
My family do not understand lupus and won't read about it. They think I complained about daily pain. They think something can be done. I tried to tell them the meds have not kicked in yet.
Understanding over sympathy
They get mad because I don't want to go places and that I need naps. I told them I don't want sympathy, I want understanding. My life has been turned upside down since my diagnosis.
Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?
Do you experience brain fog?