The Battle of a Lifetime
My name is Vanessa and I was diagnosed with Lupus SLE on April of 2016. This all stemmed from my epilepsy. In 2008 I was diagnosed with Epilepsy and put on a medication called Trileptal. At first, it was ok, mostly because I hated medication and was bullied for my seizures so I didn’t take it as prescribed. I took it whenever I felt like it. My seizures were ok, I probably had about 1-2 quarterly. Sometimes a lot less. One day I had a bad seizure in a donut shop and my mom urged me to take my medicine regularly. When I did, I started feeling terrible, less than a year later I became severely allergic to the medication and was diagnosed with drug-induced Lupus and was very sick and in the hospital for a week, that was in 2014. After that, I was recovering and the doctors were sure that I would make a full recovery. Late 2015 I started working in third shift, part-time. It was taking a bit of a toll on me and I started getting some seizures after being seizure-free for some time, but I continued to work. In January of 2016 I went in for lab work and the doctors said everything looked great and that they didn’t think I had SLE but that they needed to confirm. So when I returned in April, they were shocked to see that I had SLE. It was a shock to me too. I became a certified holistic nutritionist by December of 2017. Its been really hard to always eat the right things, but I do the best I can to manage my stress and learn my body and listen to it. One rheumatologist even thought my seizures could have stemmed from the Lupus but there’s was never a diagnosis.
Thank you for taking the time to read my story! I’m praying that everyone that’s suffering from this debilitating invisible condition gets the help they need!
Who do you turn to first for emotional support? (choose up to three)