My Story

I HAVE HAD A LOT OF HEALTH ISSUES FOR YEARS, But my mom didn't get any answers for awhile (I was 7 at the time).

Dismissed as migraines

At one of my doctor's appointment they said I just had migraines and gave me liquid Loratab. Finally found a Doctor that looked in my eyes and told my mom get me to the hospital immediately. Turned out I had a brain tumor and it had left me with many symptoms because they had to take my pituitary gland out, so when I started having symptoms at 15.

My personal symptoms

My mom got back to taking me to a ton of doctors. Finally they said I had Lupus and my personal symptoms for many years are as follows:

  • I have dry eyes, dry skin.
  • Dentist said I have very dry mouth, rinses didn't work.
  • I get sores in my mouth.
  • Eyes tender to light
  • Type 2 Diabetes
  • High Blood pressure
  • Underactive thyroid
  • When I get upset, mentally/physically I get tired for days.
  • Arthritis in back, hands, and neck
  • I have a rash on my face and arms and it feels like sunburn.

So after years of this being in my files, it pops up. This isn't the doctor I was seeing at the time. She said, "well, it's not as bad as some." I didn't say a word. All this time I have had these issues and no one listened...

What should I tell my doctor?

So I go back in a week to see my doctor, always for sugar check, every three months. So should I tell her all these issues or do I just go on thinking it's in my head? I have learned how to deal with these issues, but I'm tired of wondering if there's help and I'm not nuts. I also suffer from depression. "Surprise"

Well THANK You for listening, FELT GOOD to get IT all out to someone besides MY Momma even though she ALWAYS listens and always comforts me I don't know where I'd be without her.

Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.