Childhood Lupus and Feeling Different

I am Maha, 19 years old. I have been diagnosed with SLE in 2013. I was only 12 years old, I had such a healthy beautiful life, I loved everything and enjoyed every moment. The start was unusual and strange, I had pains in my joints specifically, in my knees, and generally, I was tired not feeling well. It was different. I didn't fall down or have a fight. The pain was unexplained and annoying.

Lupus symptoms increased

Then the symptoms started to increase and become more severe, I started to feel weak and always tired.

After maybe two months, I had a very bad fever. I couldn't move, and with every single breath, I was in pain.

I am not living alone. I was stubborn, I chose what I want to do. And my parents always listened to me. So when I had that fever, they forced me to meet the doctor. I had lots of blood work, and this was new to me.

Then after many tests and procedures, I have been digested with SLE.

What is SLE?

I didn't understand anything, WHAT IS SLE? IS THIS REAL?

They give medications to control my immune system, and I must have these medications for the rest of my life. I didn't know how long they meant, I was only 12.

So I took the medications and my symptoms were controlled. But my whole life has changed. It's like the SLE clear my mind, I was depressed. All these pains, it's really affecting your thoughts. I started to be alone, isolating myself for no reason. I want it to be alone.

Managing my lupus

Now it's almost eight years with SLE. I managed my life, I've faced lots, and I took lots of lessons. Now I'm mentally stronger, I take my medications every single day, and I'm grateful for that.

Maybe Lupus changed my life forever, but that's what made me who I am today.

I am thankful for every single person who supported me during that period, I am very grateful to my parents.

With love,
Maha

Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Lupus.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.