Stories

My name is Julie. I have scleroderma, lupus. It was so hard trying to get a doctor visit, everyone wanted to do it on the computer. I was like, "oh...

I found out about 60 days ago that I have skin lupus. I was treated with hydroxychloroquine and had a reaction to it. Has anyone else had this happen? Are...

I am not sure I have had Lupus, diagnosed March 23 2021. I have had years of back and hip pain. Then 10 yrs ago, I spent a year taking...

I have had a lot of health issues for years, but never got an answer. My last doctor's appt. She asked, "did you know you have lupus?" What? "NO." Four...

I was diagnosed with SLE the summer of 1987. I had to have surgery in May of that year. After surgery, my incision spread from an invisible line to a...

My husband and I have been disaster responders for years. I've been deployed to fires, floods, hurricanes (most recently Hurricane Harvey) and locally on a continuous basis to structure or...

My name is Julie 51 years old. 2004 I was in a severe car wreck. My best friend died on impact. I was left to die in the car with...

Hey, I have had lupus since my teens and I am in my late fifties now! I also have PTSD and so many other things it’s ridiculous! But I have...

I did feel strange the day I went for Jury Duty. In fact, after arriving at the courthouse, I was so tempted to let the officer know that I was...

I was diagnosed with SLE Lupus in 1999, it's been a long journey that has helped me to grow stronger. As most lupus patients would say just take it one...

I've had Lupus since a child. I experience pain differently compared to many. I thought the pain was a normal way of life and never really complained. I was a...

My symptoms started when I was 21yrs old. I had just gotten married and was working one of my dream jobs. I was first diagnosed with rheumatoid arthritis. Then I...

I left my rheumatologist office one day so empty inside, so alone with my own body, defeated, sad, and mostly abandoned by life. It is hard when your doctor wants...

When you graduate high school there’s this feeling that the whole world is available to you and to all of your dreams. Shortly after I graduated in 2004 at 18...

Gentle greetings, I’m Lina T. These are a couple of layers of my health journey. I was already a widow in my late 20’s and I had the courage to...

Hi. Does anyone else have dry scalp? And what do you do for it? I am getting growths of some kind on my face like keratosis too. The last flare...

Hi all, I have most of the symptoms but never tested - neutropenia, low fever, mouth sores, red cuticles, fatigue, Raynaud's, septrin allergy. Just wondering if anyone else has the...

Hi, my name is Vanessa Jimenez, and I was first diagnosed with Epilepsy in 2008 before lupus. I was getting partial and grand mal seizures and my doctors don’t know...

My name is Dion Langley and I am a professional drummer. I began playing the drums at the age of 6 and soared to all sorts of heights in my...

I was diagnosed 10 years ago with lupus, celiac and Hashimoto's within a short time. Some days are worse than others. But the flare-ups are the worse. I have had...