Self Care During a PandemicMy name is Julie. I have scleroderma, lupus. It was so hard trying to get a doctor visit, everyone wanted to do it on the computer. I was like, "oh...reactions5comments
Newly DiagnosedI found out about 60 days ago that I have skin lupus. I was treated with hydroxychloroquine and had a reaction to it. Has anyone else had this happen? Are...reactions1comment
Juggling Family Tragedy and LupusI am not sure I have had Lupus, diagnosed March 23 2021. I have had years of back and hip pain. Then 10 yrs ago, I spent a year taking...reactions4comments
Confused and DismissedI have had a lot of health issues for years, but never got an answer. My last doctor's appt. She asked, "did you know you have lupus?" What? "NO." Four...reactions11comments
Coping with SLE and MotherhoodI was diagnosed with SLE the summer of 1987. I had to have surgery in May of that year. After surgery, my incision spread from an invisible line to a...reactions1comment
Disaster Responder Living with LupusMy husband and I have been disaster responders for years. I've been deployed to fires, floods, hurricanes (most recently Hurricane Harvey) and locally on a continuous basis to structure or...reactions5comments
Car WreckMy name is Julie 51 years old. 2004 I was in a severe car wreck. My best friend died on impact. I was left to die in the car with...reactions4comments
Panic Attacks and LupusHey, I have had lupus since my teens and I am in my late fifties now! I also have PTSD and so many other things it’s ridiculous! But I have...reactions2comments
You Have Lupus. Now What?I did feel strange the day I went for Jury Duty. In fact, after arriving at the courthouse, I was so tempted to let the officer know that I was...reactions11comments
Challenging SymptomsHi my name is karen willis, I am 51 years old. I was diagnosed with lupus Nov. 19, 1999. I have 3 adult daughters, with my first grandchild on the...reactions25comments
Winning The War of LupusI was diagnosed with SLE Lupus in 1999, it's been a long journey that has helped me to grow stronger. As most lupus patients would say just take it one...reactions3comments
My MGUS and Lupus ConnectionI’ve had lupus and Sjogren’s since my late thirties, I’m now in my sixties. I would say that I’ve been on the less severe spectrum with no life-threatening features of...reactions8comments
A Childhood StoryI've had Lupus since a child. I experience pain differently compared to many. I thought the pain was a normal way of life and never really complained. I was a...reactions5comments
My LupusMy symptoms started when I was 21yrs old. I had just gotten married and was working one of my dream jobs. I was first diagnosed with rheumatoid arthritis. Then I...reactions9comments
The Perfect FriendI left my rheumatologist office one day so empty inside, so alone with my own body, defeated, sad, and mostly abandoned by life. It is hard when your doctor wants...reactions2comments
My Ever-Changing NormalWhen you graduate high school there’s this feeling that the whole world is available to you and to all of your dreams. Shortly after I graduated in 2004 at 18...reactions2comments
Steroid Cream for Scalp?Hi Ava, You mentioned steroid cream for scalp. Can you tell me more about that? Thanks JoAnn...reactions2comments
From Being a Social Worker to Needing OneGentle greetings, I’m Lina T. These are a couple of layers of my health journey. I was already a widow in my late 20’s and I had the courage to...reactions7comments
Dry Scalp? What Do You Do for It?Hi. Does anyone else have dry scalp? And what do you do for it? I am getting growths of some kind on my face like keratosis too. The last flare...reactions14comments
Newbie - Neutropenia? Raynauds?Hi all, I have most of the symptoms but never tested - neutropenia, low fever, mouth sores, red cuticles, fatigue, Raynaud's, septrin allergy. Just wondering if anyone else has the...reactions1comment
