I have finally purchased 2 long sleeved shirts so I can go outside when it's sunny.
Sun sensitivity and lupus
I always get sicker when I go in the sun and break out in a rash all over my arms with big red blotches and feels like the sun is actually burning holes in my skin. It's terrible, especially since I've always been an outside person.
Carrying on with my life
Lupus has changed my life completely. Been diagnosed with MCTD in 2017. I have never felt so much pain. I ignore the pain and carry on with my life when I'm not in bed because I just can't stay in bed and cry for the rest of my life!
Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?
Have you been diagnosed with fibromyalgia?