Lupus Lost Me My Job

I was diagnosed with lupus nephritis last July. After years of not knowing I had lupus, I went on short-term disability for six months.

Trying to return to work

Because I still didn’t feel well enough to return to my full-time, commuting into New York City during the pandemic job, when my disability ended, instead of perhaps giving me accommodation (I couldn’t work from home as my job was administrative assistant, but still, shorter hours, fewer days?) I was terminated.

Adapting to the cost of care

Luckily I am 65 and able to collect Social Security, but if I wasn’t married, I would not make it, especially with doctors and medical bills!

Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?