My MGUS and Lupus Connection

I’ve had lupus and Sjogren’s since my late thirties, I’m now in my sixties. I would say that I’ve been on the less severe spectrum with no life-threatening features of having lupus. I have sun sensitivity, fevers, rashes, fatigue and aches, and pains. Compared to many who experience many harsh symptoms I know I’m lucky. Now I have developed MGUS (monoclonal gammopathy of undetermined significance). My Rheumatologist sent me to an oncologist/hematologist for more testing and follow up. My cloning proteins are steadily going up over the last two years. My oncologist/hematologist says that they are beginning to see the connection between autoimmune diseases and blood cancers. If my light chains and heavy chains have reached an even higher ratio then I will have chemotherapy, not because it’s quite yet myeloma but rather to protect my kidneys which are already at stage 3 kidney failure. My next testing should tell me if I’ve progressed to shouldering multiple myeloma. I am curious to find out how many of my lupus sisters are experiencing MGUS also.
Thank you for reading my long rant!

Melanie♥️

Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Lupus.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Do you read through your insurance policies and ask questions?