The Less Severe Side of the Spectrum
I’ve had lupus and Sjogren’s since my late thirties, I’m now in my sixties. I would say that I’ve been on the less severe spectrum with no life-threatening features of having lupus. I have sun sensitivity, fevers, rashes, fatigue and aches, and pains. Compared to many who experience many harsh symptoms I know I’m lucky. Now I have developed MGUS (monoclonal gammopathy of undetermined significance). My Rheumatologist sent me to an oncologist/hematologist for more testing and follow up. My cloning proteins are steadily going up over the last two years. My oncologist/hematologist says that they are beginning to see the connection between autoimmune diseases and blood cancers. If my light chains and heavy chains have reached an even higher ratio then I will have chemotherapy, not because it’s quite yet myeloma but rather to protect my kidneys which are already at stage 3 kidney failure. My next testing should tell me if I’ve progressed to shouldering multiple myeloma. I am curious to find out how many of my lupus sisters are experiencing MGUS also.
Thank you for reading my long rant!
Are you a man living with lupus?