Active 4 days agoWhat phrases are you tired of hearing?When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...Reactions 0 reactions Comments30 repliesAwarenessCopingFriends & Family
Family SupportHow do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus is real and can affect you instantly without...Reactions 0 reactions Comments28 repliesFriends & Family
What gifts would you want to receive? Learning of a new lupus diagnosis can feel overwhelming. Some friends and family may want to help show support, but not know how best to show up. What gifts would...Reactions 0 reactions Comments12 repliesDiagnosisCopingFriends & Family
What advice would you give a friend living with lupus?Everyone here knows what it means to live with a rheumatic condition. If you just learned your friend has lupus – newly diagnosed OR living with it for years –...Reactions 0 reactions Comments27 repliesFriends & FamilyTips & Advice
How do I explain this to my family?My health has been on a downhill slide for about three years. I need to enlist more help from my adult children with household and outdoor work. I was very...Reactions 0 reactions Comments5 repliesCaregivingFriends & Family
Dealing with SiblingsI was diagnosed in Dec. 2022. It has been a swift and complicated time since then. I have been diagnosed with Stage 2 kidney disease, cyst on kidney, bladder infection...Reactions 0 reactions Comments2 repliesFriends & Family
My Wife's Lupus & DepressionHello, My wife was diagnosed with lupus and neural Sjögren's about eight years ago. She's been getting monthly Benlysta infusions for the past five years. They have helped her flare...Reactions 0 reactions Comments1 repliesDepressionFriends & FamilyMental Health
Anyone struggling with gift ideas?Christmas is in 14 days! I've only bought two gifts so far. Between lupus pain, fatigue, and brain fog, who has time to think of gifts for their family? Or...Reactions 0 reactions Comments9 repliesTips & AdviceFriends & Family
Calling all Lupus Warrior Moms! Let's discuss motherhood! Being a lupus warrior is hard, being a lupus warrior mom is super tough! Let's come together and share our joys, challenges, frustrations, whatever to help one another. If you...Reactions 0 reactions Comments12 repliesFriends & FamilyAwareness
Social ActivitiesHow do you all handle your social lives? Do you still talk with friends or go out when you can and it is safe? How do you keep your social...Reactions 0 reactions Comments4 repliesFriends & Family
