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Read conversations, start a discussion, and connect with others about Lupus.

Active 6 days ago

Family Support

How do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus is real and can affect you instantly without...

What advice would you give a friend living with lupus?

Everyone here knows what it means to live with a rheumatic condition. If you just learned your friend has lupus – newly diagnosed OR living with it for years –...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...

What gifts would you want to receive?

Learning of a new lupus diagnosis can feel overwhelming. Some friends and family may want to help show support, but not know how best to show up. What gifts would...

How do I explain this to my family?

My health has been on a downhill slide for about three years. I need to enlist more help from my adult children with household and outdoor work. I was very...

Dealing with Siblings

I was diagnosed in Dec. 2022. It has been a swift and complicated time since then. I have been diagnosed with Stage 2 kidney disease, cyst on kidney, bladder infection...

My Wife's Lupus & Depression

Hello, My wife was diagnosed with lupus and neural Sjögren's about eight years ago. She's been getting monthly Benlysta infusions for the past five years. They have helped her flare...

Anyone struggling with gift ideas?

Christmas is in 14 days! I've only bought two gifts so far. Between lupus pain, fatigue, and brain fog, who has time to think of gifts for their family? Or...

Calling all Lupus Warrior Moms! Let's discuss motherhood!

Being a lupus warrior is hard, being a lupus warrior mom is super tough! Let's come together and share our joys, challenges, frustrations, whatever to help one another. If you...

Social Activities

How do you all handle your social lives? Do you still talk with friends or go out when you can and it is safe? How do you keep your social...

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