Family Support
How do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus is real and can affect you instantly without warning?
I have been fortunate in that most of my family and friend are being very supportive, while others are hesitant about what to say or they don't understand how my life is gonna change as this condition progresses.
Gabby Formica,Good Evening or Good day,I m here as a friend and Lupus Warrior myself w that if you need to talk,or me to Pray w you,It s hard not having that full support but I m here and I can be that support or we lend support to one another.Even listening or messaging,Also I m in a Support Group for Lupus called Thrive wi Lupus and we meet online at 7pm Every 3rd Thursday if you like to join up with all whom on that Support Group Live!You have to register
And feel free we all support n show encouragement as friends and Warriors in Our Lupus
Go To Live With Lupus and sign up then Register.Sure you will gain friends with Support.
Blessings 🙌 Healings to All the Lupus Warriors 💜, thank you for sharing your words of understanding and support with this community! And thanks for the information about a support group for folks living with Lupus.
I am so glad you took the time to join this conversation!
Best, Erin, Team Member.
I find it pretty standard. My PCP doesn't support me, so expecting them to be supportive is my standard.
sorry your PCP has no clue. That has been the story of many unfortunately. Sometimes even rheumatologists don’t support well either 😩 ~Racquel ~ lupus.net team member I am Bless too have a Good PCP after having two Doctors whom didn't care about me
I don’t have a SO, but I have been so lucky to have a very supportive family. They let me live with them for five years when I couldn’t live on my own bc I had no income. I know not everyone has supportive family so I know just how lucky I am. I will never take it for granted.
Amber (lupus.net team moderator)I just have my kids
With visions of suicide dancing in my head. I know. Not funny.
it’s hard but try and get yourself some mental support to get you past these periods of despair Wow I know that because I live with 3 Adults and it's very hard dealing with the lupus I try and keep my body very calm but it's very hard I am so glad to be in this Group
