Family Support
How do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus is real and can affect you instantly without warning?
I have been fortunate in that most of my family and friend are being very supportive, while others are hesitant about what to say or they don't understand how my life is gonna change as this condition progresses.
Oh that is so good to hear. I love hearing that family is supportive. it makes it that much easier to deal with those difficult times. ~Racquel~ lupus.net team member I have no family support and and a couple friends. My kids are my everything and my family. But I get really lonely
I find it pretty standard. My PCP doesn't support me, so expecting them to be supportive is my standard.
sorry your PCP has no clue. That has been the story of many unfortunately. Sometimes even rheumatologists don’t support well either 😩 ~Racquel ~ lupus.net team member 
I am Bless too have a Good PCP after having two Doctors whom didn't care about me
I don’t have a SO, but I have been so lucky to have a very supportive family. They let me live with them for five years when I couldn’t live on my own bc I had no income. I know not everyone has supportive family so I know just how lucky I am. I will never take it for granted.
Amber (lupus.net team moderator)With visions of suicide dancing in my head. I know. Not funny.
it’s hard but try and get yourself some mental support to get you past these periods of despair Wow I know that because I live with 3 Adults and it's very hard dealing with the lupus I try and keep my body very calm but it's very hard I am so glad to be in this Group
