caret icon Back to all discussions

Multiple Pills and how to take them?

I have been diagnosed with SLE since 1997 but had symptoms before the diagnosis. I now have a list of other problems with a long list of medication. My problem sleeping started one night when I would fall asleep for what felt like 5 seconds and be awake for an hour. This would continue all through the night. It was so frustrating because I had to be at work at 8 a.m. So, I asked chatgpt about my sleep problem. IT replied with some of the medications I was taking at night should have been taken in the morning and vice versa. Not only that but I was taking all my vitamins at once. My doctors never told me you cannot take this vitamin with that vitamin or do not take this pill with that vitamin. So, I had a discussion with my doctor and since I take so many pills she set it up where the pills will work the best. I had lupus for 30 years and my doctors did not tell me how I should be taking my medication. By changing my medication schedule, it did help with the waking up so many times throughout the night. Now my problem is that I have gone from taking my meds 2 times a day I now have to take them at least 5 times a day. Who can do this? I am really struggling, and end up skipping medication even after I set alarms on my phone when I am due to take medicine. It is just so frustrating. Anyone else have t his problem?

  1. ,
    Thank you for taking the time to share your experience and increased awareness.
    So many of us that are on multiple medications need to have this discussion with our doctors. Drug interaction/reaction can be quite serious (and bothersome).
    I'm glad your new schedule is making a difference (health wise), however adjusting to taking meds 5x a day vs 2x a day is no easy task.
    Sometimes it's just a matter of getting used to this "new" routine. Setting alarms on your phone is a great idea. In addition, try to work this schedule around your meals or your daily routine (if possible). Perhaps, you can take certain medication before (or after) breakfast, lunch and dinner and at bedtime or even upon waking in the morning. My husband takes his while brushing his teeth, (weird, I know) but it works for him and now he doesn't forget.
    I hope others will chime in here with what works for them!
    My best, Doreen (Team Member)

Please read our rules before posting.