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Read conversations, start a discussion, and connect with others about Lupus.

Skin sensitivity

Hi Everyone! Sooo i have SLE, as well as a multitude of other autoimmune diseases (I’m basically collecting them like Pokémon now). But, i recently have had intense and painful...

COVID19

Has anyone with lupus survived COVID-19?...

New Brand of Hydroxychloroquine

New brand of hydroxychloroquine doesn't seem to be effective. I am experiencing pain in joints that I have not had with my older hydroxychloroquine. Old pill round marked GG260 new...

Brain fog and fatigue

Hi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...

Lupus Awareness

Have you learned anything new about lupus that you didn’t know this lupus awareness month? Is there anything you have learned on your lupus journey that has surprised you?...

Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a barrel. Feel awful, weak in the knees....

Sleep Habits

How well do you sleep at night? What are your tricks to help you sleep better?...

How do you handle the heat when wearing so much clothes?

Clothing choices Cooling devices Tips on how to deal with heat and sun....

My diagnosis 24 years ago

My diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high school. My government teacher saw I was fatigued...

Lupus and Covid

I've have Lupus and add all my vaccines. I'm 77 and have had Lupus for 20 years. I'm on Day 2 of Paxlovid. I'm having a hard time. Any suggestions?...

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