Lupus related??I was diagnosed with alopecia when I was 14 — still have random flare ups (27 now). Have always dealt with this skin issue. The spots appear raised and pink/red...Reactions0reactionsComments1 replies
Depression and anxiety and dealing with family I’m struggling soo bad some people in my family are saying hurtful things and I just can’t help myself from crying being upset is not helping me I just have...Reactions0reactionsComments2 replies
Shame and GuiltDo you have shame or guilt when needing to rest?...Reactions0reactionsComments128 repliesCoping
Family SupportHow do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus is real and can affect you instantly without...Reactions0reactionsComments67 repliesFriends & Family
The link between Lupus and Sjogren’s I have had Sjogren’s and Sarcoidosis for 20 years along with Breast Cancer, Hodgkin’s Lymphoma and 2 courses of Non Hodgkin’s Lymphoma. None of the usual drugs have worked so...Reactions0reactionsComments1 repliesResearch & Clinical Trials
Itch I haven't had a shower or a bath for around 3 years because any water even rain makes me feel like a million Ants are biting me My doctor said...Reactions0reactionsComments3 replies
Has anyone bled postmenopausal?Could anyone help me with this? I'm 51 and just had bleeding after 2y of not having a period. It started on Oct 19 and it's been happening every 10...Reactions0reactionsComments4 repliesTips & Advice
Lupus Just a question for anyone who has sle lupus and family members that have had been diagnosed with asbestos cancer and the correlation between these diseases I was reading about...Reactions0reactionsComments1 replies
Chest Pain Anyone? I sometimes have chest pain around my heart that feels like a stabbing pain, lasting only a few seconds, and happens a few times an hour and for several hours...Reactions0reactionsComments2 replies
Keeping personal journal to learn about flaresI was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...Reactions0reactionsComments3 repliesTreatmentCoping