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Read conversations, start a discussion, and connect with others about Lupus.

Lupus and Covid

I've have Lupus and add all my vaccines. I'm 77 and have had Lupus for 20 years. I'm on Day 2 of Paxlovid. I'm having a hard time. Any suggestions?...

Testing for crazy stuff

My old doctor diagnosed me with lupus and told me that he wouldn't give me any of the pills because they would kill me so I got a new doctor...

What do I tell my Boss

At work I am constantly overwhelmed and not sure what to tell my supervisor, when I’m good to do my job but some days it takes me a little longer...

Severe headaches for years

Has anyone found relief from the severe headaches besides steroids?...

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I thought that's what was causing it so if...

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...

After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after recovering from a flare?...

Nausea

I was diagnosed with Lupus in 1998,but I have been very nauseous for the past 2 weeks. Does anyone know what it could be...

Lupus pain

Does anyone get pain in right side of chest and neck?? Ive been totally checked for heart stuff so don't know what this is bit it happens all the time...

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