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Read conversations, start a discussion, and connect with others about Lupus.

Depression and anxiety and dealing with family

I’m struggling soo bad some people in my family are saying hurtful things and I just can’t help myself from crying being...

The link between Lupus and Sjogren’s

I have had Sjogren’s and Sarcoidosis for 20 years along with Breast Cancer, Hodgkin’s Lymphoma and 2 courses of Non Hodgkin’s Lymphoma...

Itch

I haven't had a shower or a bath for around 3 years because any water even rain makes me feel like a...

Has anyone bled postmenopausal?

Could anyone help me with this? I'm 51 and just had bleeding after 2y of not having a period. It started on...

Lupus

Just a question for anyone who has sle lupus and family members that have had been diagnosed with asbestos cancer and the...

Chest Pain Anyone?

I sometimes have chest pain around my heart that feels like a stabbing pain, lasting only a few seconds, and happens a...

Keeping personal journal to learn about flares

I was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I...

Coping

What’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...

Things I found that help

Since I suffer with both Lupus & Sjogrens, I found that taking the supplement glutathione and Lactoferrin help. In addition, an infrared...

Connection Between Lupus and Low Sex Drive?

At age 49, I started feeling really bad. I gained over 30 pounds in 3 months with no changes in my eating...

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