Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

How do you feel about using technology to help manage health? Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Seizures and Lupus

Do I have seizures or something else related to Lupus? I’m 20 and I was diagnosed almost a year ago with lupus, but I can’t figure out if these episodes...

Advocates, Ya'll OK?

I not only have a heart for our community, but there's a special place in my heart for fellow advocates. We're not only patients ourselves, but I feel there's an...

Calling all Lupus Warrior Moms! Let's discuss motherhood!

Being a lupus warrior is hard, being a lupus warrior mom is super tough! Let's come together and share our joys, challenges, frustrations, whatever to help one another. If you...

Exogen test

I have been treated with plaquinil for 5 years now. About a year ago I went for a second opinion on my lupus diagnosis. She got the exogen results and...

Struggling with a diagnosis

My names Rachel, I'm 35. I have been experiencing some symptoms of lupus. I have the classic butterfly rash along with heat and sun sensitivity. I'm 8 months pregnant and...

Introduction and Seeking Lupkynis Advice

My name is Ed. I am retired USAF, and have been a full-time Bladesmith (knifemaker) since retiring in 2003. I'm located In Great Falls, Montana. My road to a diagnosis...

Test results

Hello everyone, I just had blood test done on Friday and I got my results back and I’m not understanding what it all means and I’m hoping that maybe somebody...

Newly Diagnosed and Feeling Sick

Hi guys! How is everyone? I was recently officially diagnosed with Lupus (about a month and a half ago) and started Plaquenil - I have not noticed a difference, but...

Question for the ladies

Good Evening All: I am new to this forum. I am blessed to report my sle lupus is in remission. I truly thank God!! Ladies, I am working on a...

Blood test advice

Hello! Thank you for reading my post! I need some advice. I have been experiencing joint pain in my ankles, wrists, hands, and pain in my legs. I tested positive...

Categories

Select a category to find topics that interest you.