Living with Lupus and Bad Nerve Pain
I have had nerve pain for a while in my legs feet and hands. Four days ago I had head pain so bad that it gave me bad migraines and my eyes were affected. I also had bad stomach pains. I was a mess, and my husband wanted me to go to the hospital. I didn't want to...I was stupid. I am on pain meds (palexia sr 50mg). It doesn't help much. I can't keep going like this. I spend all my time in bed. Ten minutes ago I dropped my glasses on the floor and bent down to pick them up. I could hear something snap. I feel like I fractured something. I can't move much. I recently had two fractures in my back, and the pain was horrible. I'm curious if anyone else is also experiencing nerve pain alongside lupus. For those that have experienced it, what do you do to help the pain? Thank you so much
, I'm so sorry you are experiencing so much pain and discomfort without relief. Nerve pain, joint pain and bone issues are unfortunately so common with lupus. If you haven't already, I would recommend reaching out to your rheumatologist to let them know that you think you may have another fracture. They may be able to suggest additional medication support. This list has some non-prescription treatment options for folks: https://lupus.net/complementary-alternative-medicine. Soaking in a warm bath with epsom salts could be potentially helpful in easing some pain. Everyone is different so its hard to know exactly what will help you, but I hope some of this information is useful. Let us know how it goes. Sending gentle hugs
Gabby (team member)thank tou so mutch gabby i rearly appreciate your feedback i dint know where else to go my sister told me to try here as she could hear how bad i was its been a horble week but i will check out that alternative meds and see how i go i do have a rheumatogist but she is away at the moment iam on palexia sr 50 mg but for me not strong enough i dint do mutch tday as i was sore just rest i need to sleep thats another thing i dont sleep maybey half hour last night not enough for now thanks who reads this 🥰 , I hope some of the alternative meds help ease the pain in the meantime while you wait for your next rheumatology appointment. Let us know how it goes!
Gabby (team member)
I find it helpful when I get weekly massage and get in the hot tub everyday.. but since I can't afford it anymore so I just live with the pain now. I'm homeless and it's very hard to live but sleep most of the time I never try using those that may could help me on disability. I've been trying over 12 years now and got denied. I'm not gonna lie I'm very miserable and want help. If I could work I would. I've been fighting this since 2009 . Thank you for responding to me. Corrina 
So sorry to hear about your situation. on top of being ill and being homeless it can really be overwhelming. What area are you in? Are there any agencies that may be able to help you find housing and healthcare? I can imagine that you are feeling so frustrated and afraid in this rough situation. ~Racquel ~ lupus.net team member
So sorry you are dealing with that nerve pain. It is definitely frustrating. Whenever I feel any type of pain like that, I contact my doctor.I have not had any episodes since the last time I had shingles. It was treated with lyrica that seemed to help. Definitely speak with your doctor to rule out any other issues. Thanks for sharing. ~Racquel~ lupus.net team member Hi racguel thank you for replying to me i have had another terrible week off nerve pain my specialist for lupus gave me palexia sr 50mg it seprecest it a little but now its all over i rang her she is putting me on 100 mg i hope it wont make me sleepy i feel like iam up against something i have no control over i can see the nerves jumping on my feet it feels horrible and even looks more bad i vidio taped it on my phone to show doctor she said all ur muscle are contracted i wish i had that on my ipad so i could show you regards from 😘
, I can hear the pain in your post and my heart goes out to you. I'm so sorry for all the discomfort you have been experiencing. I'm glad you reached out to your doctor and were able to get it on video to show them what you are going through! I hope this increase in dosage helps with the pain. Sending gentle hugs,
Gabby (team member)
