Do you get to share your opinion about lupus care?Many living with lupus feel misunderstood by their providers. Last year, the survey this community responded to revealed important findings on the struggle to get a diagnosis, issues related to...Reactions0reactionsComments4 repliesAwareness
Facial Rash Hi, I have been diagnosed with Lupus after having a biopsy done on my face due to a facial rash. Would anyone be able tell me the name of the...Reactions0reactionsComments1 repliesButterfly RashAwareness
Fixing my profile picture Hi, I am brand new to this site. I did a profile picture and it is sideways. How do I straighten it out. Thank you for the help....Reactions0reactionsComments3 repliesTips & Advice
Is anyone coping with myocarditis?Community members are asking about a recent myocarditis diagnosis. Does anyone else experience this? How do you cope?...Reactions0reactionsComments0 repliesSymptoms
rheumatologistI'm moving close to Madison Wisconsin and need a new rheumatologist. Any suggestions?...Reactions0reactionsComments1 repliesHealthcare Team
Lupus Awareness Month 2021What is the most important thing you can think of to share about lupus awareness? What do you need people to know about your lupus journey?...Reactions0reactionsComments7 repliesAwarenessSymptomsDiagnosis
Its OK to not be OKHi all. Every month I have too many appointments to go through. I lost my dad recently. I’m applying for housing and tomorrow I have to go to the SSI...Reactions0reactionsComments7 repliesMental HealthCoping
Stressed Seeking SupportI have lupus and have a bad diet and very stress need to talk to someone for support...Reactions0reactionsComments1 repliesDiet & NutritionCoping
The covid-19 shot Are we supposed to get the shot if we have lupus or is it best not to need answers ...Reactions0reactionsComments1 repliesSide Effects
Waiting on Diagnosis I have been trying to get a diagnosis for 5 months. I spent a few months with a neurologist that thought I had MS, I’ve had so much blood work...Reactions0reactionsComments5 repliesSymptoms