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Read conversations, start a discussion, and connect with others about Lupus.

Exogen test

I have been treated with plaquinil for 5 years now. About a year ago I went for a second opinion on my lupus diagnosis. She got the exogen results and...

Struggling with a diagnosis

My names Rachel, I'm 35. I have been experiencing some symptoms of lupus. I have the classic butterfly rash along with heat and sun sensitivity. I'm 8 months pregnant and...

My horrible journey with Lupus

Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely traumatizing exhausting journey until I finally able to get a proper diagnosis and a proper test...

Introduction and Seeking Lupkynis Advice

My name is Ed. I am retired USAF, and have been a full-time Bladesmith (knifemaker) since retiring in 2003. I'm located In Great Falls, Montana. My road to a diagnosis...

Test results

Hello everyone, I just had blood test done on Friday and I got my results back and I’m not understanding what it all means and I’m hoping that maybe somebody...

Newly Diagnosed and Feeling Sick

Hi guys! How is everyone? I was recently officially diagnosed with Lupus (about a month and a half ago) and started Plaquenil - I have not noticed a difference, but...

Question for the ladies

Good Evening All: I am new to this forum. I am blessed to report my sle lupus is in remission. I truly thank God!! Ladies, I am working on a...

Blood test advice

Hello! Thank you for reading my post! I need some advice. I have been experiencing joint pain in my ankles, wrists, hands, and pain in my legs. I tested positive...

Does anyone feel like they have brain fog?

Brain fog is a common symptom of lupus. Meghan shares tips to help manage lupus-induced brain fog (https://lupus.net/?p=3907). Experience brain fog or have tips? Your story could be helpful for...

What type of clothing is best when dealing with a lupus flare?

Clothing can create challenges for those living with lupus. Maggie shares 12 Tips for Dressing with Lupus - https://lupus.net/living/clothing-tips including slip-on shoes and work out clothes. What tips would you...

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