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Benlysta

My Dr is starting me on Benlysta injections soon. Has anyone ever taken these and if so your opinion please....

The link between Lupus and Sjogren’s

I have had Sjogren’s and Sarcoidosis for 20 years along with Breast Cancer, Hodgkin’s Lymphoma and 2 courses of Non Hodgkin’s Lymphoma. None of the usual drugs have worked so...

Cart T-Cell Therapy for Lupus/Autoimmune

After taking over a decade to diagnose, and now having lived with Lupus for a number of years, which in my case caused Interstitial Lung Disease, Lupus Nephritis, Fibro, and...

A New Hypothesis: Can Moderate Sun Exposure Prevent SLE Flare-Ups?

Hi there, I am currently studying the relationship between vitamin D and the immune system, specifically in relation to SLE patients. Despite my research, I have found limited information on...

Have you ever been to Azia, South-America or Africa before you got lupus?

Dear all, Before you got lupus, have you ever in your life been to Azia, Africa or South-America? For holiday or did you live there? And/ or has a close...

ANA? are they always positive?

hi everyone im currently going through the slow process of diagnosis, i am yet to have my ana panel taken, I've done some reading on them and just want to...

Will You Take our 2023 In America Survey?

The Lupus Foundation of America estimates that 1.5 million people in the United States have a form of lupus. Our 2023 In America survey aims to better understand the patient...

White Blood Cells

Hello everyone! I am finding it hard to figure out what the white blood cells are attacking? Why are the white blood cells confused and what is causing them to...

To Vax or not to Vax

Good Evening Warriors! Has it not been the craziest 2 years? Seriously!? I have Lupus, 2 different kidney diseases (nephrocalcinosis, and polycystic kidney disease) and as of May 2020, have...

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