Benlysta

, While we wait for others in the community to share their experiences with you. I thought it might be helpful to share a few articles written by one of our advocates about her experience with the Benlysta injection treatment. She wrote one article about preparing to begin the treatment: https://lupus.net/living/infusion-treatment-prepare another about her first injection experience: https://lupus.net/living/first-benlysta-infusion and another about tips for those thinking of starting benlysta: https://lupus.net/living/tips-benlysta-infusions Hope these are helpful!
Gabby (team member)

I have not taken the injection but I do take the infusion. Benlysta has helped me tremendously. I hope you get the same results. Good luck let us know how it goes. ~Racquel ~ lupus team member

I've been on monthly Benlysta infusions for just over 5 years now. Typically...for me... I get the infusion (about a 3 hour process/visit) and for the rest of that day feel "wonky". I usually go to bed early, and get up the next day feeling "good" relative to how I feel without Benlysta. For about 3 weeks, unless there are abrupt weather changes, with fast barometric pressure changes, which cause significant pain for me, I feel almost as if I don't have Lupus. But near the end of that 3rd week, I can feel the Benlysta's effects wearing off. And the whole cycle starts again with the next infusion. For me it's certainly helped my quality of life, even if it is a "cycle" thing. Not long ago my Rheumatologist said he would like to try Saphnelo, so we did. BAD MOVE! About 10 mins after they started the infusion, the room started spinning, my speech started slurring, and they quickly ended the infusion..... I'm allergic to Saphnelo. That being said, My Doc says those who tolerate it well, say it offers more/better relief/control of Lupus than Benlysta does. If you have good report, and trust your Doctor, don't be afraid to try what he/she suggests. No two cases of Lupus are the same, therefore no treatment(s) are the same from person to person.