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A New Hypothesis: Can Moderate Sun Exposure Prevent SLE Flare-Ups?

Hi there,

I am currently studying the relationship between vitamin D and the immune system, specifically in relation to SLE patients. Despite my research, I have found limited information on the exact reasons why sun exposure may be harmful to those with SLE.

I am particularly interested in learning about the duration of sun exposure that is considered harmful, as well as the biological mechanisms that occur within our cells during exposure to UVA and UVB radiation.
How much is too much time for an SLE patient? And even, could moderate sun exposure maybe reduce the likelihood of flare-ups by increasing the activated forms of Vitamin D?
I believe this information is crucial in order to provide clear and specific guidance to those with SLE.

The general recommendation from rheumatologists to avoid sun exposure at all costs seems too vague and generic, especially considering that individuals have different skin types and varying levels of susceptibility to skin damage.

I am hoping to connect with others who may have come across similar research, or who are currently studying this topic. If you have any insights or resources to share, I would greatly appreciate it.

Thank you,

LC

  1. Photosensitivity can really differ from person to person but it is definitely something lupus warriors have to e careful with. I’m hoping doctors aren’t giving blanket statements to just stay out of the sun. Here is a great article that may explain further. https://lupus.net/symptoms/photosensitivity


    Thanks for your question and points. ~Racquel~ lupus.net team member

    1. My dr had prescribed me vitamin D because I was low. I get moderate natural sun but, meds prevent direct as well as my bodies reaction. She also has me take vit a I think it is for helping create new blood cells.

      1. , Thanks so much for sharing, have you noticed any changes since you started taking it?
        Gabby (team member)

    2. The cocktail that I’m on now keeps things for the most part manageable. I have sle, srogrens and fibro throw in a body of arthritis lol I take prednisone, hydro, duluxtine , thyroid vit d and a . I know we all have different issues but, this is the best I’ve felt since diag in 2013. I love my dr I am in S Fl


      1. , I'm so glad you found a treatment plan that works for you and a doctor that listens!!
        Gabby (team member)

    3. Sorry folic acid and no to a difference. I learned have food w it tho

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