The link between Lupus and Sjogren’s
I have had Sjogren’s and Sarcoidosis for 20 years along with Breast Cancer, Hodgkin’s Lymphoma and 2 courses of Non Hodgkin’s Lymphoma. None of the usual drugs have worked so I was interested to see that Manchester Infirmary are testing CAT T cell on people with Lupus.
At present I have extensive ulceration over a large part of my body, painful joints and pain all over especially at night. I did have pulmonary Sarcoidosis initially but the following cutaneous symptoms have been the worst part as I have deep scarring on my face as well as soreness and Lymphodema in my right leg. Adalimumab has been suggested but there is a query about using it with Sjögren’s because of the link with Lymphoma. I do already have lymphoma in my right growing which is being monitored.
My question is will the new Lupus regime work with these other auto immune diseases
Like others I will agree to anything to get back to some normality as it has ruined our retirement years for my husband too.
Hi,
!
Well, in all honesty, I can't offer any insight into your situation, as you are by far the person who knows your body and your health issues best.
So, medications used to treat Lupus can also work for other autoimmune conditions, like Rheumatoid Arthritis and Psoriatic Arthritis, etc. I also seem some medication overlap for Sarcoidosis and Lupus, RA, and MS (notably, hydroxychloroquine, leflunomide, methotrexate, etc). So, in theory, treating your Lupus could help with some of your other health issues.
But, the lymphoma risk throws a bit of a wrench into the plans. And, you and your doctor should probably continue to have a good, long discussion about the risks/benefits scale.
In the end, only you can decide how to treat your health conditions. I understand your desire to actually be able to enjoy your retiremennt years with your husband and I think pursuing treatment is a smart move on your part. As long as your medical team stays on top of your complex medical situation and stays in communication with you about potential side effects and risks you may experience, you should pursue whatever treatment option feels right to you.
I know that's not much of a helpful answer, but I do hope that whatever you choose brings you some measurable relief, with minimal side effects!
Best, Erin, Team Member.
