Has anyone done the Benlysta infusions? I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I...reactions48repliesSide EffectsSleepTreatment
Second illnessI watch what I eat. I take all my medicine. Talk to your concern. But most important I read. Your dr. Cannot...reactionsrepliesAwarenessCopingDepression
ITCHING Does anyone have a problem with itching?? It's driving me crazy, mainly at night. Please suggest something that will work to make...reactions1reply
New Brand of HydroxychloroquineNew brand of hydroxychloroquine doesn't seem to be effective. I am experiencing pain in joints that I have not had with my...reactions15repliesTreatment
Methylpredisone Just energizes me unbelievable how it has me ups.But nighttime too until fatigue sets in.But we all will get there Then I...reactions2replies
What are some tips for managing a chronic wound?I have had a chronic wound on my left calf for 110 days now. I’ve been seeing a wound care specialist the...reactions5replies
tremorsHas anyone ever gotten tremors? Twice now, I have gotten tremors that were like my whole body getting the shakes uncontrollably, and...reactions1replyFatigueSleep
Micardis/TelmistartinHas anyone had any experience with hypertension and been put onto this medication and had side effects or weight gain/weight loss?...reactions1replySide Effects
Cutaneous lupusI have both systemic and cutaneous lupus. I’m wondering if anyone else out there with cutaneous lupus experiences skin shedding. I periodically...reactions2repliesSymptoms
Ssi/ssdiWhat does a doctor look for or how do you ask your rheumatologist to dx you as disabled when applying for disability....reactions1reply