Type 1 Diabetes & Lupus?
Do any of you also have Type 1 Diabetes? What Lupus treatments work for you that don’t mess with your blood sugars?
Has anyone previously had JRA?
Also, is anyone out there in their mid-twenties? My 24 yr old daughter was diagnosed with Lupus two days ago. She is also going to have tests repeated for the blood clotting disorder, and a 24-hr urine to check for kidney damage as her protein/creatinine ratio is off.
She was diagnosed with JRA at around 12 months and went into ‘remission’ around age 3 1/2. Then she was diagnosed with Type 1 diabetes at age 5. This new diagnosis of Lupus has us both so sad. She’s already been through so much. (And I’m a stage 4 breast cancer survivor, and have highly zero-positive RA.)
Thank you!
, I'm sorry to hear what both you and your daughter have gone through! Getting a new lupus diagnosis can feel emotional and often overwhelming. Here is an article with some things that our community members shared about things they wish they knew when they were first diagnosed: https://lupus.net/living/newly-diagnosed-tips. While I don't have personal experience with type 1 diabetes or JRA, I thought I would include an article about the connection between lupus and RA while we wait for others in the community who can relate to chime in https://lupus.net/clinical/rheumatoid-arthritis . I hope this helps! Please know we are here to support you as much as we can along this journey! Sending gentle hugs,
Gabby (team member)
I'm so sorry that your daughter is going through this. You both are very strong. I have Type 2 Diabetes, Lupus and RA. Everyone is so different with how their body reacts to medicine so that's a hard one to answer. When I was diagnosed, I kept a journal to see how everything including food made me feel so I could keep track. I will say my son is Type 1 Diabetic he was diagnosed at 12 and will be 25 in December. Although he has not shown any symptoms of lupus he has shown symptoms of RA. For him stress and changes in his body cause some joint inflammation. Not sure if that helps a little, but thought I'd mention that.
It can be difficult with a new diagnosis. I am holding space for both of you to gain some clarity for your situation. It can be hard to get the treatment balanced and set up. Please let us know how it works out. ~Racquel ~lupus team member
Hi JanLee ,
I just wanted to piggyback on what the others have mentioned. This can certainly be an overwhelming time, please know this community is here for both of you.
Thanks for posting this beautiful picture. The love you have for each other is radiating.
All my best, Doreen (Team Member)
Yes. Type 2.
, Sorry you have been juggling both lupus and T2D at once. It can be a lot to manage at once, we hear you!
Gabby (team member)type 2 here as well. How are you treating your diabetes? ~Racquel~lupus.net team member
