Lupus HELP

Why haven't we heard more about getting help with clinicals/Trials.
Money for prescriptions. I was on Journavx and paying $30.00 with a coupon from the Rheumatologist. However 4 weeks ago the prescription price bumped up yo $636.00. Now that is not right. Of course I denied paying that cost. I'm not sure what is going on with Lupus and etc. My first two chemo pill trials didn't work and then Benlysta infusion was really bad. I felt like I was on really bad meds, like you see on TV. So I've been without any medication for OVER four months. Rheumatologist said I had to get all the other meds out of my system. Then she will start Saphnelo. Anyone on this? Ive seen some people say they can't take it and their switching to Benlysta. I'm so scared and lost!!! I just don't know what to do. No mom, no grandparents or family 🙁
I do have one Aunt that just moved back from Alabama, but she works as surg tech 3 or 4, so her schedule is busy. I'm just wondering if anybody is just as lost feeling as I am??