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Read conversations, start a discussion, and connect with others about Lupus.

What gifts would you want to receive?

Learning of a new lupus diagnosis can feel overwhelming. Some friends and family may want to help show support, but not know...

Do you experience brain fog? Please share your experience with us!

Let's have a frank conversation about brain fog. Brain fog is often described as relentless, frustrating, and a major source of fatigue...

Coping with the first year after diagnosis and tips for keeping track of symptoms

I'd love to know how those who have been living with lupus for a while made it through the first year(or more)...

Making family believe you really are sick

Does anyone else have their own family believe that there is nothing wrong with them and it's all in your head. This...

Sojourns syndrome

Burning tongue Pallet Lips Gums Does this sound familiar to anyone? Nicky...

What helped my lupus

Update: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K...

Im still learning ...does anyone suffer with emotional issues due to lupus?

I was diagnosed last year although I believe I have had it a long time. The pain becomes unbearable at times but...

How long does it take for an ANA result?

Hi! My journey has just begun. I am waiting for a second ANA test result, it's been over 2 weeks now. My...

Fever every single night!

Does anyone else get fevers nearly every single evening that progressively get worse making you feel like ya have the flu? This...

Support

What support groups or resources have you found most helpful on your lupus journeys?...

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