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Read conversations, start a discussion, and connect with others about Lupus.

Coping with the first year after diagnosis and tips for keeping track of symptoms

I'd love to know how those who have been living with lupus for a while made it through the first year(or more). Between all of the appointments, trying to keep...

Making family believe you really are sick

Does anyone else have their own family believe that there is nothing wrong with them and it's all in your head. This has caused a huge lump on my shoulder...

Sojourns syndrome

Burning tongue Pallet Lips Gums Does this sound familiar to anyone? Nicky...

What helped my lupus

Update: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I...

Im still learning ...does anyone suffer with emotional issues due to lupus?

I was diagnosed last year although I believe I have had it a long time. The pain becomes unbearable at times but 60 percent of the time time it is...

How long does it take for an ANA result?

Hi! My journey has just begun. I am waiting for a second ANA test result, it's been over 2 weeks now. My C reactive protein came back high, and some...

Fever every single night!

Does anyone else get fevers nearly every single evening that progressively get worse making you feel like ya have the flu? This happens to me at least 2 weeks out...

Support

What support groups or resources have you found most helpful on your lupus journeys?...

Covid Vaccines

Are any of you on Hydroxychloroquine and are not getting the Covid vaccine? I had Covid (w/double pneumonia, etc), a year ago, and now am suffering w/Post Covid Syndrome, and...

What helps you cope?

Lupus can be physically and emotionally draining. What are some things that help you cope on tough days?...

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