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Read conversations, start a discussion, and connect with others about Lupus.

Medication Denied

Just looking for some advice. In addition to lupus, I’ve also been diagnosed with congested heart failure, hypotrophic cardiomyopathy. Afib, and pulmonary hypertension. For years I was on plaquenil ...

Confused and undiagnosed

I've has one positive ANA titre 1:160. Then I've had elevated dsDNA while ANA is negative. I've been really sick since 2014 with no real answers. I have all symptoms...

Tests required for diagnosis?

Curious to know what tests it takes to get a Lupus diagnosis? My mother had Lupus, and various other autoimmune diseases. I also have various illnesses and want to be...

Undiagnosed, SLE?

Hello all, My wife's Nuclear Antibody Titre is 1:320 (Homogenous pattern) and her follow-up tests showed the following: dsDNA Antibody : 16 IU/mL B2 GlYCOPROTEIN 1 lgG ANTIBODY: >115.0 u/ml...

Sores and rash - could this be lupus?

Hi there - new here and looking for input. I’ve long been suffering with a variety of ailments - endometriosis when I was younger, chronic migraines, fibromyalgia, reynauds (though it’s...

I Have Regional Lupus with Epilepsy

I am 43 years old this year. I have regional lupus with epilepsy. anyone similar to me? Epilepsy has followed me since childhood. and lupus about 10 years ago. Recently...

Skin biopsy results

Hi, I just got the results of a skin biopsy. Chronic skin inflammation with concerns of lupus What does this mean?...

Males trying to conceive w/ partner while on heavy meds

I am a 33 year old male with lupus nephritis. I am on cellcepts (hydroxychlorquine, lupynis, Losartan pills to control my lupus. I was told that trying to conceive with...

What Have You Learned

We all can learn something daily about those around us and ourselves. As you walk on your lupus journey, What have you learned about yourself that you never knew?...

Lupus Warrior

Hello, my name is Tammy and I was diagnosed with Lupus in 2008, currently taking Plaquenil as a treatment, along with steroids when I flare up, which is usually about...

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