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Read conversations, start a discussion, and connect with others about Lupus.

Asthma with Lupus

I have had a few Asthma episodes in the last two years (try to see a pulmonologist in Covid world. Ugggh). Attacks are not severe enough to be life-threatening but...

How to Deal with Prednisone Side Effects?

Hi everyone, I've been diagnosed with lupus for 8 months now. At first, no one warned me about the side effects either related to lupus or its medicines. Besides the...

Vitamins

Hi hope everyone is doing well. I just wanted to know if anyone has any suggestions as to which multivitamin is best for Lupus?...

Holiday Blues

How are you all dealing with any holiday blues that pop up out of nowhere? What are some tips and tricks to get past the holiday blues?...

Seizures and Lupus

Do I have seizures or something else related to Lupus? I’m 20 and I was diagnosed almost a year ago with lupus, but I can’t figure out if these episodes...

Advocates, Ya'll OK?

I not only have a heart for our community, but there's a special place in my heart for fellow advocates. We're not only patients ourselves, but I feel there's an...

Calling all Lupus Warrior Moms! Let's discuss motherhood!

Being a lupus warrior is hard, being a lupus warrior mom is super tough! Let's come together and share our joys, challenges, frustrations, whatever to help one another. If you...

Exogen test

I have been treated with plaquinil for 5 years now. About a year ago I went for a second opinion on my lupus diagnosis. She got the exogen results and...

Struggling with a diagnosis

My names Rachel, I'm 35. I have been experiencing some symptoms of lupus. I have the classic butterfly rash along with heat and sun sensitivity. I'm 8 months pregnant and...

My horrible journey with Lupus

Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely traumatizing exhausting journey until I finally able to get a proper diagnosis and a proper test...

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