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Read conversations, start a discussion, and connect with others about Lupus.

A new chapter

I was diagnosed with undifferentiated autoimmune in 1991. Took plaquenil until 2012 when a slight change in my left macula was detected (first time using super duper eye machines, new...

Methotrexate and lupus

I have had lupus for 32 years. 10 years ago, I was prescribed methotrexate In tablet format. It caused so many side effects, diarrhea, vomiting and hair loss, to name...

Blood pressure spikes

Has anyone here living with lupus also had experience with spikes in blood pressure?...

Low Ferritin

Hi everyone, I’d like to start off by saying that I haven’t been tested for Lupus, nor have I raised concerns about it with my doctor. I have the following...

Moon Phases

Anyone have some issues as the moon passes through different phases like me? It has happened to me since I was a child. I guess if it can have an...

Positivity

It can be tough to stay positive when dealing with the ups and downs of lupus. What are some ways you like to lift yourself up on especially hard days?...

Looking for a rheumatologist in Puerto Rico

Moved to Puerto Rico in March last year haven’t seen a rheumatologist since being here, very hard to make an appointment due to COVID-19....

The vaccine

Should lupus patient get a covid-19 shot I need a answer a truth answer...

Internal tremors

I have been experiencing internal tremors. Is it normal to experience tremors with lupus and is there anything I can do to make them stop?...

Methotrexate

Hi, I was diagnosed with Lupus 6 months ago. I am on hydrozychloroquine and have now stopped prednisone. 2 months ago I started methotrexate (tablet once a week). I have...

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