Introduction and Seeking Lupkynis AdviceMy name is Ed. I am retired USAF, and have been a full-time Bladesmith (knifemaker) since retiring in 2003. I'm located In Great Falls, Montana. My road to a diagnosis...Reactions0reactionsComments1 repliesTips & AdviceTreatment
Test resultsHello everyone, I just had blood test done on Friday and I got my results back and I’m not understanding what it all means and I’m hoping that maybe somebody...Reactions0reactionsComments1 repliesDiagnosis
Newly Diagnosed and Feeling SickHi guys! How is everyone? I was recently officially diagnosed with Lupus (about a month and a half ago) and started Plaquenil - I have not noticed a difference, but...Reactions0reactionsComments2 repliesSymptoms
Question for the ladiesGood Evening All: I am new to this forum. I am blessed to report my sle lupus is in remission. I truly thank God!! Ladies, I am working on a...Reactions0reactionsComments8 repliesAwarenessCoping
Blood test adviceHello! Thank you for reading my post! I need some advice. I have been experiencing joint pain in my ankles, wrists, hands, and pain in my legs. I tested positive...Reactions0reactionsComments2 repliesSymptoms
Does anyone feel like they have brain fog? Brain fog is a common symptom of lupus. Meghan shares tips to help manage lupus-induced brain fog (https://lupus.net/?p=3907). Experience brain fog or have tips? Your story could be helpful for...Reactions0reactionsComments0 repliesTips & Advice
What type of clothing is best when dealing with a lupus flare?Clothing can create challenges for those living with lupus. Maggie shares 12 Tips for Dressing with Lupus - https://lupus.net/living/clothing-tips including slip-on shoes and work out clothes. What tips would you...Reactions0reactionsComments14 repliesTips & AdviceSymptoms
Are you living with CREST syndrome?Thank you to community member penny130 whose story (linked below) inspired us to look further into the connection between CREST syndrome and lupus - https://lupus.net/stories/car-wreck. This article provides some information...Reactions0reactionsComments2 repliesTreatmentSymptoms
Male HereI it's understand possibly rare for men to have lupus? I have had symptoms for years, diagnosed 6 months ago and have to wait another 3 months to see a...Reactions0reactionsComments1 repliesSymptoms
Daughter recently diagnosed with LupusMy daughter received a Lupus diagnosis recently because of her low platelet counts and enlarged red blood cells, in addition to all of the Lupus markers which were discovered when...Reactions0reactionsComments2 repliesTips & Advice