What Do I Do?I just signed up, like 3 minutes ago. Can someone give me some guidance as for what to do? How this site works? I’m trying to find a supportive site...Reactions0reactionsComments3 repliesCoping
still waitingHi all I'm new here. I haven't been diagnosed with lupus however thru my own research I see my symptoms and some test results certainly point to it. My doctors...Reactions0reactionsComments4 repliesDiagnosis
My worst flare up yetI recently had my worst flare-up yet. Does anyone know what I should do that can help me? I was suffering from severe headaches, body aches and pain down my...Reactions0reactionsComments4 repliesCopingTreatment
living with multiple auto immune disordersI've recently been diagnosed with Lupus and started on Benlysta. Before I started with this rheumatologist, the previous one diagnosed me with psoriatic arthritis and I was on Remicade for...Reactions0reactionsComments1 repliesCopingDiagnosis
Does anyone have any experience with lupus induced by anti-tumor necrosis factor (TNF) agents?In 2018, I was diagnosed with drug-induced lupus after three infusions with Infliximab for Crohn's disease. I was told that the symptoms would resolve fairly quickly after stopping the drug...Reactions0reactionsComments4 repliesDiagnosisHealthcare Team
Need adviceI was recently diagnosed with lupus and I am currently am on plaquenil twice a day. I have been on this medication now for a total of 1 1/2 months...Reactions0reactionsComments4 repliesTreatmentFatigue
Do you get to share your opinion about lupus care?Many living with lupus feel misunderstood by their providers. Last year, the survey this community responded to revealed important findings on the struggle to get a diagnosis, issues related to...Reactions0reactionsComments4 repliesAwareness
Facial Rash Hi, I have been diagnosed with Lupus after having a biopsy done on my face due to a facial rash. Would anyone be able tell me the name of the...Reactions0reactionsComments1 repliesButterfly RashAwareness
Fixing my profile picture Hi, I am brand new to this site. I did a profile picture and it is sideways. How do I straighten it out. Thank you for the help....Reactions0reactionsComments3 repliesTips & Advice
Is anyone coping with myocarditis?Community members are asking about a recent myocarditis diagnosis. Does anyone else experience this? How do you cope?...Reactions0reactionsComments0 repliesSymptoms