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Read conversations, start a discussion, and connect with others about Lupus.

Introduction and Seeking Lupkynis Advice

My name is Ed. I am retired USAF, and have been a full-time Bladesmith (knifemaker) since retiring in 2003. I'm located In Great Falls, Montana. My road to a diagnosis...

Test results

Hello everyone, I just had blood test done on Friday and I got my results back and I’m not understanding what it all means and I’m hoping that maybe somebody...

Newly Diagnosed and Feeling Sick

Hi guys! How is everyone? I was recently officially diagnosed with Lupus (about a month and a half ago) and started Plaquenil - I have not noticed a difference, but...

Question for the ladies

Good Evening All: I am new to this forum. I am blessed to report my sle lupus is in remission. I truly thank God!! Ladies, I am working on a...

Blood test advice

Hello! Thank you for reading my post! I need some advice. I have been experiencing joint pain in my ankles, wrists, hands, and pain in my legs. I tested positive...

Does anyone feel like they have brain fog?

Brain fog is a common symptom of lupus. Meghan shares tips to help manage lupus-induced brain fog (https://lupus.net/?p=3907). Experience brain fog or have tips? Your story could be helpful for...

What type of clothing is best when dealing with a lupus flare?

Clothing can create challenges for those living with lupus. Maggie shares 12 Tips for Dressing with Lupus - https://lupus.net/living/clothing-tips including slip-on shoes and work out clothes. What tips would you...

Are you living with CREST syndrome?

Thank you to community member penny130 whose story (linked below) inspired us to look further into the connection between CREST syndrome and lupus - https://lupus.net/stories/car-wreck. This article provides some information...

Male Here

I it's understand possibly rare for men to have lupus? I have had symptoms for years, diagnosed 6 months ago and have to wait another 3 months to see a...

Daughter recently diagnosed with Lupus

My daughter received a Lupus diagnosis recently because of her low platelet counts and enlarged red blood cells, in addition to all of the Lupus markers which were discovered when...

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