World Lupus Day #putonpurpleWorld Lupus Day is celebrated around the globe on May 10th, honoring those living with lupus. On world lupus day, advocates from around the world are calling for more research...Reactions0reactionsComments1 repliesAwarenessCoping
Hughes Syndrome & Throat ClunkingHave read many posts on forum and will add stuff myself soon about shared symptoms but besides the many stiffness and pains I have a problem with my throat clunking...Reactions0reactionsComments5 repliesBrain FogFatigueJoint Pain
Newly diagnosedHiya, I just got diagnosed with early, mild, evolving lupus on Wednesday. It felt quite sudden as that was my first appointment with rheumatology, and after researching a bit more...Reactions0reactionsComments2 repliesDiagnosisCopingTips & Advice
Urinary Frequency Does anyone else have bladder issues? I'm up between 3-5 times a night....Reactions0reactionsComments2 repliesSymptoms
ANA positive 1:160Hi all I’m new here. I have been treated for seronegative RA for six years and biologics haven’t helped. I finally got my rheumatologist to do an Avise test. The...Reactions0reactionsComments4 repliesDiagnosisSymptomsTips & Advice
Diagnostic testingI am just curious as I continue through the possibility of a lupus diagnosis…. How many people used the lab SCL-70 extractable nuclear Ab testing high at 1.3 as part...Reactions0reactionsComments1 repliesDiagnosis
Butterfly RashNewbie here:) I am wondering how many people have almost immediate reaction to being outside in regards to the butterfly rash….most of the time a little make up will do...Reactions0reactionsComments8 repliesButterfly Rash
Awaiting results I will soon have an appointment with a 2nd rheumatologist. I finally showed a red flag on the ANA test. It suggest systematic lupus. All the while I was diagnosed...Reactions0reactionsComments10 repliesCoping
Exercise and LupusWhat is everyone doing to get their body moving? What are your favorite ways to get exercise in?...Reactions0reactionsComments5 repliesExercise
Can't live without...As you battle lupus daily what is something you can't live without? Fill in the blank, As I battle lupus day to day the thing I can't live without is...Reactions0reactionsComments37 repliesCopingTips & Advice