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Read conversations, start a discussion, and connect with others about Lupus.

Scary Moments

Disclaimer Triggering question. Please share only if you are comfortable and it doesn’t cause you stress. I often look back to see how far I’ve come and some issues still...

Living with Lupus and Bad Nerve Pain

I have had nerve pain for a while in my legs feet and hands. Four days ago I had head pain so bad that it gave me bad migraines and...

No flareup in 20 years

Following advice...

Malar rash or something else?

Hey, I’m new here so bare with me. I’m just looking for a little advice before bringing it to my GPs attention. Long story short I’ve always had a multitude...

Rash

So does anyone else get rashes on their arms and hand? I walked around a craft show for an hour and the next day had a rash on my whole...

A new chapter

I was diagnosed with undifferentiated autoimmune in 1991. Took plaquenil until 2012 when a slight change in my left macula was detected (first time using super duper eye machines, new...

Methotrexate and lupus

I have had lupus for 32 years. 10 years ago, I was prescribed methotrexate In tablet format. It caused so many side effects, diarrhea, vomiting and hair loss, to name...

Blood pressure spikes

Has anyone here living with lupus also had experience with spikes in blood pressure?...

Low Ferritin

Hi everyone, I’d like to start off by saying that I haven’t been tested for Lupus, nor have I raised concerns about it with my doctor. I have the following...

Moon Phases

Anyone have some issues as the moon passes through different phases like me? It has happened to me since I was a child. I guess if it can have an...

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